Posted 3/18/2015 8:44 PM (GMT -5)
It was the ongoing infections that had us consider stopping Remicade, and then it stopped on us...and we tried desperately to get it to work again, as the UC stopped everything. Partial list: bronchitis, pink eye, pneumonia twice, Mono twice( really once so bad they said lymphoma, then damped down till said gone, then back again so strong it was contageous again),rashes, strep throat, mysterious swelling. Doc finally said then next infection could be the end ...then Entyvio, then surgery followed.
Step #3 is Monday. Hasn't been sick since, colds now last a normal 3-6 days. So yes, having a compromised immune system is potentially life threatening, but so is surgery....