Very good blog on IBD and evidence based therapies

Hmm, I was kinda expecting more info than what was there...I recall hearing about vitamin D and the association with IBD years ago so I started taking vitamin D pills and never noticed any difference after many years of taking it (along with vitamin A and C as those were also associated to IBDers).

As far as sleep issues, it mentions it's really more to do with crohn's than UC though I'm not sure how accurate that would be since I'm sure UCers have sleep issues/fatigue issues as well after all, when your body is trying to fight inflammation it can exhaust you more so not sure why it's more supposedly prone to CDers compared to UCers and as far as mentioning women having more sleep issues compared to men seems irrelevant to the degree that women with menstrual/menopausal issues would likely generally have sleep issues with or without IBD factoring in.

I just didn't find it touched on much more than vitamin D and sleep and even those 2 things had pretty limited info in that blog.

To be clear I wasn't referring to any specific blog post but all of them on the site. I think they are excellent. For example there is one that talks about if you come off a biologic can you start up again. Common wisdom says no, blog says not so fast.

J.

There is a good article buried on here somewhere written as a guideline for starting and stopping biologics after either no effect, or build up of antibodies. Has to do with some Prometheus lab tests and combining them with other tests to figure out what the optimal dosage and timing should be. Was really written as a guideline for physicians. Not sure if I could find it on here again though. It did however mention that under certain circumstances (or test results) one would switch biologics and under other results one would re-start and change the dosage amount and timing. Was quite interesting.

Not to sound negative because I appreciate the research enthusiasm, but I think by now I must've read over 50 different blogs detailing people's personal experiences with UC, not to mention forum surfing. Everyone has a different story of how they got better.

What I learned partly through my flare is that other people's experiences can only provide a guideline for what MIGHT be safe and what MIGHT work. If 90% of the chorus are saying that a certain food or supplement wreaked havoc for them, then it will likely do the same to me; but if there's a 50/50 conversation happening, then I may take the risk. And some things seem universally good.

Beyond that, it's totally subjective.

I have to agree with Chiron in that one person's blog can't be a whole lot of help to the general UC'r. Everone's case is different so reading a website such as Healing Well with thousands and thousands of members would be more informative than just one individualized case blog. We could all start our own blog and then you would have thousands and thousands of different blogs with different information, each blog by itself not very helpful to an individual UC'r.

"There is little evidence from interventional studies to support specific dietary recommendations."

Not my experience at all.