Posted 7/8/2015 12:14 AM (GMT -5)
Hugs to you.
I got diagnosed in 2002 and some people in my life have never understood. My mum is one of the worst actually, especially for saying stupid insensitive things. I don't really have any good advice as it's a problem I can't get around either. I tend to just keep repeating myself, but I have to admit that I do get snappy sometimes.
One thing which might help is finding someone else who does get it. I have a friend with diabetes, and we can talk for hours about our illnesses. It really does help, even though our diseases are so different.
Healthy people just don't understand, and I suspect that they don't really care most of the time either. I only tell people that I can trust about my UC, or people that I am forced to tell, such as bosses.
As for the closest people to us, maybe they're just unable to face it? My ex-husband was frightened that I was going to die, so he kind of went the other way, but it still damaged the relationship.