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Posted 1/3/2016 11:47 AM (GMT -5)
Best of luck! You can get through this :)
Posted 1/4/2016 12:38 PM (GMT -5)
Saw my surgeon this morning, will be getting an enema test in 3 weeks to check my pouch, then a follow up a week after that again with my surgeon. We'll probably have a reversal plan following this test :)
Posted 1/4/2016 10:55 PM (GMT -5)
sounds good. Hope it all goes as planned.
When is a usual time period for reversal?

q
Posted 1/5/2016 9:29 AM (GMT -5)

quincy said...
sounds good. Hope it all goes as planned.
When is a usual time period for reversal?

q

generally it's about 3 months in between step one and two. We needed to add time since he had to go back in and fix the leak in my pouch. I'm assuming if the test is good we may bump up the timeframe a little bit.
Posted 1/5/2016 11:08 AM (GMT -5)
That's awesome! I am so happy things are finally headed in the right direction :)

Most people I see here have reversal after 8 weeks. I had 3 step so it was 12 weeks between step 1 and 2, 8 weeks between step 2 and 3.
Posted 1/5/2016 11:22 AM (GMT -5)
Some people get reversed in 6 weeks, it really depends on how you are healing and your surgeon's preference. One-steps used to be more common where there was no waiting time.

I was 14 weeks; my surgeon didn't have availability in his schedule until then. He didn't want to do the surgery until at least 12 weeks.

I had the pouchography at 2 weeks and that was the most painful experience of my life because things hadn't healed yet but when I had it again at 10 weeks there was no pain at all and it felt only like an enema because I had healed so much.
Posted 1/7/2016 6:51 PM (GMT -5)
Woohoo! Saw my GI today, when the nurse weighed me, I gained 7 pounds since the last time I was there :) I'm now 147.4 on my way hopefully back to 170
Posted 1/7/2016 8:08 PM (GMT -5)
Congratulations! That's great news.
Posted 1/7/2016 8:09 PM (GMT -5)
Did he let you schedule takedown? It sounds like you're doing well :) Gaining weight with a loop isn't easy!
Posted 1/7/2016 9:21 PM (GMT -5)
Yes, that IS great news! Happy to hear it :-)
q
Posted 1/8/2016 7:49 AM (GMT -5)

notsosicklygirl said...
Did he let you schedule takedown? It sounds like you're doing well :) Gaining weight with a loop isn't easy!

We'll do that in 4 weeks when I see him again, in 3 weeks I go for the Hypaque Enema to test my pouch. If all is good I'm sure it won't be far away. The enema will be at the 6 week mark from surgery. It will be close to two months by the time I see him.
Posted 1/18/2016 3:22 PM (GMT -5)
I had my hypaque enema today. It was pretty cool although uncomfortable. I was able to speak to the doctor as he was taking the xrays which showed on a live xray screen. I could see my pouch fill up as well as the intestine all the way up to my ostomy. There were no leaks :)

I see my surgeon next week and I'm sure I'll have a reversal appt
Posted 1/18/2016 8:54 PM (GMT -5)
Great news! I was so scared for that enema and it was not a big deal at all. I wonder how long you will have to wait to get scheduled, maybe only a couple weeks. I am excited for you!
Posted 1/25/2016 11:26 AM (GMT -5)
Saw my surgeon today, reversal is scheduled for Feb 10 :)
Posted 1/25/2016 11:42 AM (GMT -5)
Congratulations, it's been a very long road.

I'd recommend ordering some vitamin-e cream (diaper rash cream) but most J-pouchers prefer Calmoseptine to help with the butt burn after the take-down.
Posted 1/25/2016 12:44 PM (GMT -5)
Wow...that's just in a few weeks. Happy for you!

q
Posted 1/25/2016 1:06 PM (GMT -5)
lol, i agree about the calmoseptine, though i have to say, my butt is on fire with or without it. I am just starting to figure out what makes it better/worse.

The 11th is pretty soon. Can't wait to hear about your success!
Posted 1/25/2016 1:36 PM (GMT -5)

ks1905 said...
Congratulations, it's been a very long road.

I'd recommend ordering some vitamin-e cream (diaper rash cream) but most J-pouchers prefer Calmoseptine to help with the butt burn after the take-down.

I'm sure I'll buy them all lol. I want to make sure I have a full arsenal to find out what will work best for me
Posted 1/25/2016 1:38 PM (GMT -5)

quincy said...
Wow...that's just in a few weeks. Happy for you!

q

16 days and counting :)
Posted 1/25/2016 1:41 PM (GMT -5)

notsosicklygirl said...
lol, i agree about the calmoseptine, though i have to say, my butt is on fire with or without it. I am just starting to figure out what makes it better/worse.

The 11th is pretty soon. Can't wait to hear about your success!

have you found certain foods to be worse than others?
Posted 1/25/2016 1:49 PM (GMT -5)

blksteeda said...

ks1905 said...
Congratulations, it's been a very long road.

I'd recommend ordering some vitamin-e cream (diaper rash cream) but most J-pouchers prefer Calmoseptine to help with the butt burn after the take-down.

I'm sure I'll buy them all lol. I want to make sure I have a full arsenal to find out what will work best for me

I bought some Depends too just incase I had some leakage the first month or so after my surgery.

I didn't need the Calmoseptine or the Depends but I wanted to be prepared.

Also people buy bidets`or squirt bottles to help with the butt burn.
Posted 1/25/2016 2:26 PM (GMT -5)

ks1905 said...

blksteeda said...

ks1905 said...
Congratulations, it's been a very long road.

I'd recommend ordering some vitamin-e cream (diaper rash cream) but most J-pouchers prefer Calmoseptine to help with the butt burn after the take-down.

I'm sure I'll buy them all lol. I want to make sure I have a full arsenal to find out what will work best for me

I bought some Depends too just incase I had some leakage the first month or so after my surgery.

I didn't need the Calmoseptine or the Depends but I wanted to be prepared.

Also people buy bidets`or squirt bottles to help with the butt burn.

sadly I have plenty of depends from my colitis accidents. I thought about wearing them as well just in case.
Posted 1/25/2016 2:59 PM (GMT -5)

blksteeda said...

notsosicklygirl said...
lol, i agree about the calmoseptine, though i have to say, my butt is on fire with or without it. I am just starting to figure out what makes it better/worse.

The 11th is pretty soon. Can't wait to hear about your success!

have you found certain foods to be worse than others?

At this point, definitely spicy food. I haven't had trouble with acidic really. I have had a few times where I ate something random and had burn and it was completely unexpected. I hope it gets better soon. Sometimes I just deal with the burn if I want a spicy taco or something.

I have the handheld bidet, it's great! It's just a water bottle you fill. It has a special spout and a ball bearing on the bottom. I couldn't live without it. Wet wipes can help too. I've never had leakage or worn depends, not with UC and not since surgery. I am lucky I guess. I have miscalculated gas a few times though, only at home, out and about I would go to a toilet. I am getting WAY better but you never know. If you push hard, you're asking for trouble. I wasn't even comfortable passing wind for a few weeks - now i am nearly a pro. shocked
Posted 1/25/2016 3:15 PM (GMT -5)

notsosicklygirl said...

I've never had leakage or worn depends, not with UC and not since surgery. I am lucky I guess. I have miscalculated gas a few times though, only at home, out and about I would go to a toilet.

The leakage thing is more of your body needing to relearn, especially in the first couple of months if your sphincter becomes too relaxed while sleeping you could suffer from some leakage at night.

I never had that problem probably because I am a horrible sleeper.
Posted 1/25/2016 3:58 PM (GMT -5)
That's great news!
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