HealingWell
Search Close Search
☰

Can't get into remission

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/30/2016 11:23 AM (GMT -5)
Dx Jun 2014 with mild proctitis via scope (some bleeding and mucus)
Dx Jan 2015 with severe proctitis and IBS via scope (bleeding, mucus, pain)
Now it's been 2 years, even though I'm always on Pentasa suppositories I can't get into remission, in fact my symptoms seem to have worsened a bit. Urgency, feeling like I still have more, formed stool with watery poo and always bleeding. It's a rare thing for me not to bleed.
This week I've ran out of suppositories and decided to see what would happen... today's it's, 5.30, I've had 6 running trips to the bathroom, mostly just to spray blood everywhere, last trip I didn't make it and it looked like a period in my underwear (sorry if that's tmi, but I'm sure I'm safe in this forum lol)
Surely after all this time, I should be seeing some relief. I know proctitis is hard to defeat but do yous think that maybe I need to try new medication? Do yous think I may need more than a suppository?

And also to all the experts, when i get my scopes, the diagnosis was Non-specific proctitis.... ??? what's that now

Cheers, hope you are all doing well.
Posted 3/30/2016 11:29 AM (GMT -5)
Not sure about "non-specific". Should be acute or chronic (which is UP).

If biopsies were taken, try to get the actual reports.

You might try Uceris. When I started to slip out of remission and get some urgency, it put me back. There are also enemas instead of suppositories.

It is possible an oral mesalamine would help, but less likely if your inflammation is only in the rectum.

Since you had IBS diagnosis, I think you should take a med for that. Something to keep the gut form spasms.

good luck
Posted 3/30/2016 1:24 PM (GMT -5)
Have you tried a steriod rectal med? Have you ever been on enemas instead of suppositories?
Posted 3/30/2016 1:36 PM (GMT -5)
If you have ulcerative proctitis (the chronic kind) and have been struggling for two year then I'd advocate for a much stronger class of medications. I'd ask about immunomodulators: Imuran, 6mp, or aza. Some cases of UP are very stubborn and require very strong medications to control. That's a long time to struggle, so I'd say it's time to get aggressive in your treatment to finally get some relief.
Posted 3/30/2016 2:19 PM (GMT -5)
i would first recommend trying mesalamine, both oral and enemas in addition to the suppositories -

unfortunately, it's quite possible the inflammation has spread -
Posted 3/30/2016 4:08 PM (GMT -5)
I would def. recommend oral and rectal mesalamine (enema). Also could add Cortifoam or steroid enema in addition (mesalamine enema at night, cortifoam in the morning). Best to get the medicine right where the problem is. If you do all that and after a good amount of time still don't reach remission--then I would consider a new class of drugs (higher tier).
B
✚ New Topic ✚ Reply