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Ulcerative Colitis
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Posted 7/31/2016 4:58 PM (GMT -5)
Hoping that Callalilly, Fruitgirl, Malkavian, Paul L., & Tournevise are doing well; we haven't heard from you for a long while. / Old Hat (35 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 7/31/2016 8:45 PM (GMT -5)
Paul L had his colon out...don't know if he had a j-pouch. Fruitgirl is always on my mind when I eat fruit...especially blueberries! go figure, lol.
Hope all are doing well!

q
Posted 7/31/2016 10:44 PM (GMT -5)
I wish them well, and I hope their uc is well tamed and that they're out enjoying life symptom-free! And remember to check-in every once and a while, or else we worry about ya :-)
Posted 8/1/2016 1:13 AM (GMT -5)
I wonder where they all went?.. I remember I used to just read posts as a guest and there were more active members present in this forum.

A few of them whom I remember are Guywithuc? Insofla? They shared some great info with us too.
I see that Quincy is still here since I joined last week :D
And Notsosicklygirl moderator is still here too :D
Posted 8/1/2016 7:23 AM (GMT -5)
Fruitgirl is doing well I believe. She is one of my friends on FB. She just recently moved back to MI. As for the others I am not sure but I hope they are doing good.
Posted 8/1/2016 7:35 AM (GMT -5)
I miss soystud.
Old Mike
Posted 8/1/2016 7:37 AM (GMT -5)
OM, he's still here. He's Juststud now.
Posted 8/1/2016 8:08 AM (GMT -5)

Old Mike said...
I miss soystud.
Old Mike


i'm sure he misses you too OM smilewinkgrin

btw, howz the kid doing ?
Posted 8/1/2016 8:14 AM (GMT -5)

Red_34 said...
OM, he's still here. He's Juststud now.

not for long turn
Posted 8/1/2016 11:00 AM (GMT -5)
That name change was obvious....we still called you soy mostly anyway.

q
Posted 8/1/2016 11:10 AM (GMT -5)
Soy:
So far 2 weeks at zero pred, will check later today if any strange changes.
But as far as I know so far so good.
Immune system should have ramped up at around 5mg so more like 3 weeks.



OM
Posted 8/1/2016 11:18 AM (GMT -5)
sweet ! thanks for the update - glad he's holding his own -
Posted 8/1/2016 1:34 PM (GMT -5)
I wonder where they all went?.. I remember I used to just read posts as a guest and there were more active members present in this forum

Maybe some of them don’t feel completely at home here. There are more and more people, even some doctors, who are looking more closely at alternatives and diet. The culture here might change slightly if we had at least one moderator who believed that diet might help their symptoms.

Right now I believe that almost all the moderators have said repeatedly that diet had nothing to do with their ulcerative colitis.
Posted 8/1/2016 2:12 PM (GMT -5)
Well I don't post that much anymore, because I have pretty much ran out of interesting
stuff to look at, and pass on so everyone knows.
I also hope to not have to post anything about my son other than all is well.
I am just as stumped as all the docs combined on a cure, or even to put myself
into solid remission.

Old Mike
Posted 8/1/2016 4:12 PM (GMT -5)

Louiseluck said...
I wonder where they all went?.. I remember I used to just read posts as a guest and there were more active members present in this forum

Maybe some of them don’t feel completely at home here. There are more and more people, even some doctors, who are looking more closely at alternatives and diet. The culture here might change slightly if we had at least one moderator who believed that diet might help their symptoms.

Right now I believe that almost all the moderators have said repeatedly that diet had nothing to do with their ulcerative colitis.

Doubtful on that reasoning.
Posted 8/1/2016 5:05 PM (GMT -5)

Louiseluck said...
I wonder where they all went?.. I remember I used to just read posts as a guest and there were more active members present in this forum

Maybe some of them don’t feel completely at home here. There are more and more people, even some doctors, who are looking more closely at alternatives and diet. The culture here might change slightly if we had at least one moderator who believed that diet might help their symptoms.

Right now I believe that almost all the moderators have said repeatedly that diet had nothing to do with their ulcerative colitis.

i agree that if we had a mod or 3 that had seen success with alternative/hair-brained treatments, then we might have a different mix of members posting, and some of the absent folks might return - but i assume that all the mods are being truthful in what they tell us regarding their own experiences - it is what it is - but who knows, maybe one of our mods has attained the sweet R by smoking some of bacongirls discarded banana peels and not fessing up nono
Posted 8/1/2016 5:13 PM (GMT -5)
Louise, I believe diet is just one piece of the puzzle. There are just so many factors and everyone is individualistic. For me, diet didn't cause my UC. Genetics, food poisoning and antibiotic over usage is what triggered mine I believe. I've tried diets over the years and even tho they never really helped, as in put me remission. They did help me figure what hurts me and what doesn't which in turn caused me to have somewhat less issues. Unfortunately I had to take the med route and Remicade is the only thing that has ever in almost 25 years put me in a stable, solid and clinical remission.

I believe whatever works for you then great! Keep it up! If you want to do diet, FMT, etc then I will cheer you on just the same :)
Posted 8/1/2016 6:33 PM (GMT -5)
Last I checked, there were many regular posters contributing ideas and only a few moderators commenting, and there are many daily posts about what works for each individual whether it's alternatives, medications or a combination of both. So, I'd argue that it's the many posters who set the daily tone through a lot of their own posts.
Posted 8/1/2016 6:37 PM (GMT -5)
Old hat, good on you for thinking of the people that dont post so much, and to wonder how they are doing, I hope they are okay.
Posted 8/1/2016 7:24 PM (GMT -5)
I am actually finding the moderators lately to be much more accepting of all variety of viewpoints... For example a while ago certain moderators would jump on anyone who was not taking any meds. I haven't seen that for some time now and I applaud it.

Haha - the moderators are more moderate in their responses.
Posted 8/1/2016 8:16 PM (GMT -5)
Quincy, the last we heard from Paul L. he had gotten the j-pouch & was having trouble with repeat pouchitis so his surgeon wanted him on abx longterm. Remember the nifty travel photos he sent us? Callalilly was trying to set up a lab internship, I think, to finish college & Malkavian was hard at work on a biomedical PH.D. in TX the last we heard from them. Tournevise had relocated with hubby to UK from Canada. I join you in wishing them well!!!!! / Old Hat (35 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 8/1/2016 8:23 PM (GMT -5)
And THANKS, SHERRY, for the update on Fruitgirl!!!!!!!!!! No wonder we haven't heard from her in a while-- if she was moving back to MI. I was just thinking of her 'cause I heard on FM news that the Finger Lakes area of NYS is slipping into a drought, and that's where she was working. / Old Hat (35 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 8/1/2016 10:12 PM (GMT -5)
OH, you must have the mind of a genius or you write things down! Either way I applaud your recall :)
Posted 8/2/2016 10:21 AM (GMT -5)

Red_34 said...
Louise, I believe diet is just one piece of the puzzle. There are just so many factors and everyone is individualistic. For me, diet didn't cause my UC. Genetics, food poisoning and antibiotic over usage is what triggered mine I believe. I've tried diets over the years and even tho they never really helped, as in put me remission. They did help me figure what hurts me and what doesn't which in turn caused me to have somewhat less issues. Unfortunately I had to take the med route and Remicade is the only thing that has ever in almost 25 years put me in a stable, solid and clinical remission.

I believe whatever works for you then great! Keep it up! If you want to do diet, FMT, etc then I will cheer you on just the same :)

I agree totally, things change with this illness, you have to keep an open mind, and go with it.
Posted 8/2/2016 1:12 PM (GMT -5)
It's a tough crowd here :)
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