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One positive thing today

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Ulcerative Colitis
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Posted 8/13/2016 7:30 PM (GMT -5)
Perspective is everything. With chronic illness it's easy to focus on the negative and what's not going so well. In this thread, we post one positive thing today, so we can post a different thing that has happened each day. It can be anything, big or small, and whether you post one thing or more, you could post about anything from having air to breathe to winning the lottery. Let's be grateful for what is good about today.

Here's my one positive thing. Yesterday I didn't go to the toilet at all after 5:30pm for the first time in a few weeks, and could enjoy watching a concert.

What's yours?
Posted 8/13/2016 7:53 PM (GMT -5)
I didn't poop today, a poopcation. Now in a Portland beer crawl with my bro and wife, let's see if I regret it tomorrow lol. Gotta live a little.
Posted 8/13/2016 9:18 PM (GMT -5)
While I am in remission from my UC I still have bowel issues due to my IBS and Diverticular disease. So today me and the hubby went around town running errands and ended up at Red Lobster for dinner. We haven't had quality time in a long time because we were renovating a house which we ultimately moved into. Then my daughter, who is divorcing her hubby came back home to live only to learn that she was pregnant (yay!). So things haven't been a bit crazy here. But I consider our dinner tonight as an early anniversary present to us both. Our anniversary is the 19th - 27 years happily married :) We will be at a 4 day event on our actual anniversary (think monster trucks playing in a giant mud bog, camping and entertainment in a campground kind of thing - so pretty much surrounded by thousands of people! Last years event had approximately 11,000 people at this event)

But the bonus today was that my gut totally behaved! 🎉
Posted 8/13/2016 11:51 PM (GMT -5)
I went to see my PCP the other day, loaded for bear about her changing my thyroid med dosage and was prepared to do battle. She saw how stressed and anxious I was about it and actually asked if I was Ok after I explained the situation. She then went on to say she understands I'm dealing with a lot of health issues and apologized for changing it without further discussion with me after my thyroid test results and and we could get to the bottom of why my thyroid is so out of whack. She said she would consult with endocrinology and if necessary, give me a referral. Well crap, she made me cry, wasn't expecting that response. Nice to know doctors do understand and realize how much a person with chronic illnesses has to deal with. 🙂
Posted 8/14/2016 8:31 AM (GMT -5)
I only went 5 times yesterday! That's down from 25 a week ago. Thanks IVIG!
Posted 8/14/2016 2:17 PM (GMT -5)
Today, there was a job I didn't think I was going to be able to do, it has been coming up for a while and I was considering pulling out, but in the end I did a really good job AND really enjoyed it. My symptoms also appear to be slowing down somewhat - but hard to tell as I haven't eaten that much over the last few days, so might be slightly artificial progress.

U B Tough said...
I only went 5 times yesterday! That's down from 25 a week ago. Thanks IVIG!

That's fantastic! :D What's IVIG?
Posted 8/14/2016 2:38 PM (GMT -5)
My hands seem better today, the other night hubby had to cut up my steak for me, can you imagine that? Tonight I am off out for a curry with my husband and daughter, I like to do that every once in a while, it will likely make me feel unwell, but i have to have it, it's something to look forward to...
Posted 8/14/2016 2:52 PM (GMT -5)
My gut does not hurt at all!
Posted 8/14/2016 5:35 PM (GMT -5)
This time two weeks ago: no appetite, nasty cramps, lots of lying down, three hours' sleep, many uncomfortable bathroom trips of mucus and blood.
Today: four little meals, no gut pain, no morning urgency or tenesmus & only 2 bathroom trips of Bristol Scale #3s with just a tiny spot of mucus.
It may all go horribly wrong tomorrow but today it's doing okay. :)
Posted 8/14/2016 7:00 PM (GMT -5)
Great to hear everyone's successes, all victories over uc are worthy of celebration both big and small yeah
Posted 8/14/2016 7:35 PM (GMT -5)

fishface said...
This time two weeks ago: no appetite, nasty cramps, lots of lying down, three hours' sleep, many uncomfortable bathroom trips of mucus and blood.
Today: four little meals, no gut pain, no morning urgency or tenesmus & only 2 bathroom trips of Bristol Scale #3s with just a tiny spot of mucus.
It may all go horribly wrong tomorrow but today it's doing okay. :)

That's really awesome! how have you managed that success?
Posted 8/14/2016 10:55 PM (GMT -5)
Today I pooped like a normal person, one solid uneventful poop. Bonus- it was in my own home (even though I was out and about most of the day). Felt like the queen. Lol.
Posted 8/15/2016 2:43 AM (GMT -5)
I found a parking space just by my office.. and then found out all the bosses are on vacation! So I can relax for the day and not be hounded by them for extra work, or questions.

(And found my doctors email address so booked to see him)
Posted 8/15/2016 3:14 AM (GMT -5)
chicken wings: I'm vaping nicotine, taking VSL & l-glutamine morning and night, & sticking to a strict diet - could all be snake oil I guess but things definitely seem to be improving. There's still a few streaks of blood in the poop this morning and I still have the energy of a dead slug, so not out of the woods yet, though here's hoping :)
Posted 8/15/2016 11:04 AM (GMT -5)
Feeling better than I have in six years! Changed insurance again and am back on Lialda, poop is normalizing again YES. The anti depressant made a huge difference--I'm back in the garden and everything's growing like crazy! Tomatoes, squash, onions, plus lots of other veggies which I can eat now (as long as they have no skin and are well cooked). Feeling nourished and wishing the very best for all beings.
Posted 8/16/2016 6:16 PM (GMT -5)
These days my UC is like an olden days crazy relative that is kept in a room (Jane Eyre and many southern families) and the neighbors aren't even sure she/he actually lives there. OK not the best politically correct metaphor ha.

I don't talk about it (except here) because it takes too long and is generally misunderstood. I met the husband of a good friend and the husband's celiac. He loved the dinner I made and wanted to know my favorite gluten-free restaurant. He is not UC but "gets" the food issue that most people do not understand. Funny bit is that he is late 70's black Jamaican. I said "How do you have celiac, that's a white person's disease?" Turns out his grandfather was Irish. I'm a LOT Irish, not diagnosed celiac except my genetic test says high chance of celiac and my gut says stay way from gluten and other grains too.
Posted 8/17/2016 4:13 AM (GMT -5)
Wow I really had to think today, in order to focus on the positive. My mind was NOT thinking positively, but here goes: Today I haven't seen any blood, I've only been to the toilet once so far this morning. And I haven't had any pain (not that this is a symptom I typically get anyway, but it's still good to think about). I already feel a bit better now...
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