I am 15 and doctor said I (probably) have ulcerative colitis

jack3210111 said...
Ulcerative Colitis can not affect only the cecum and the rectum.

Yes it can.

Google ulcerative colitis cecal patch - several links will come up on the first page.

But here's one of them in case google gets DDoSed or something.

www.miracalifesciences.com/wordpress/wp-content/uploads/2012/11/ACG_2012_Poster_Cecal_Patch.pdf

do you think I might have one? Sometimes the blood was dark red. And I get sharp pain around my ileum area sometimes, and sometimes rectal pain radiates to my right side. though these issues are almost gone now. thank God I thought I had crohn's

Jack, are you looking for feedback from others with this disease or do you have all the answers already? Instead of trying to be expert why don't you first get yourself a real diagnosis. Believe me, if you do have ulcerative colitis and it winds up being severe, whether or not the Navy accepts you is going to be the least of your problems.

The NHS England website says mild cases of ulcerative colitis may not need to be treated

mainly about what will the doctor do if the tests come back normal because i keeps saying i dont want colonoscopy and i dont have cancer

I am aware of standard medical procedure when I WANT to be diagnosed. What I am saying is if the stool test comes back normal and I demand I don't want the colonoscopy as there is nothing wrong with me, the doctor will have to agree, because he can't diagnose without colonoscopy and he can't leave the case as 'pending' indefinitely either. that's what I meant. And also even if I am not joining the navy (which I will do my best to do) I am still anxious about things. For example going to the gym and bodybuilding. So what if I bodybuild for lots of years and put on like 40 pounds of muscle and suddenly have a severe attack of UC and get hospitalised. Will I lose 40 pounds of muscle just in a flare like that? I have read some horror stories but I am worried about bodybuilding if i can lose 40 pounds of muscle in one flare and all my progress is gone.

But is that a possibility? I get worrying is wrong but I must be aware of the risks

If you have UC or Crohn's disease then, yes, rapid weight loss is likely during a severe flareup, and that indiscriminately includes both fat and muscle mass. As an example, I lost 20 pounds (9 kilograms) in about 3 weeks time during a severe flareup of my UC and that's about average (some more and some less). A severe flare can even land us in the hospital due to pain, dehydration, and anemia. A minor flare might only loose very, very little, if any weight. Flares come in small, medium, and severe sizes, and it can be random.

An emergency rescue medication used during severe flares, medication called prednisone, can make us rapidly gain weight due to bloating, water retention, and am insatiable appetite. Prednisone can also redistribute body mass from our extremities to our core. I'm currently on prednisone and have regained 8 pounds that I had previously lost. Our weight can fluctuate a lot due to the whims of UC and the steroids we need to take to combat flares. It's just an unfortunate part of living with chronic illness.

I don't get how the body can lose that amount of weight and muscle so quickly. That's what I am worried about I can go from muscular to skeletal looking :( And yes I had three vials to fill. What do they test for in each one? And I know i said I don't want a colectomy but in reality if it can cause me weight loss and all this problems then I might consider getting one just to eliminate the anxiety of 'how bad will it get'. that is IF I have UC. If you get a colelctomy, does it have any side affects? Would it be harder to absorb nutrients or bodybuild?

I am not trying to control I just have huge anxiety over this. This isn't about getting the scope. These things are causing me worry:

1. That it might affect my final stature as a grown up

2. That it might affect the size of my 'John Thomas'

3. That I won't be able to put on muscle or lose it quickly.

Also I have this video link for you guys https://www.youtube.com/watch?v=cONYR7vAD-A

it is a video by a doctor called Dr Natasha McBride. She explains how food is the best medicine and how an imbalance of gut flora can cause autoimmune disorders and mental disorders. if you go on a GAPS diet for 2 years and heal the gut flora, it cures these problems. I thought she was a quack at first but too many people are saying this. Someone mentioned Jack Lallane. Well He said the exact same thing as her almost word for word about the relationship between food and the immune and nervous system. It is nearly 50 minutes long but sooo worth it just cut out processed food also and eat organic to feed the good bacteria and restore the balance of gut flora.

Way better than taking meds and healthier. I know this isn't a problem for me because we get free meds in England, but you guys in America must pay or be insured. I also found it funny how the company that makes asacol couldn't stress enough to keep taking it even when feeling well.

I believe we've already covered all of these points, prior. Again, in green below:

jack3210111 said...
I am not trying to control I just have huge anxiety over this. This isn't about getting the scope. These things are causing me worry:

1. That it might affect my final stature as a grown up. At 15, you've already grown the majority of your adult height. Any growth at this point is very, very slow in rate and might add only a few centimeters to your total height. Can malnutrition from IBD slow growth, yes but only during severe and prolonged flares. You're not in one, so don't worry.

2. That it might affect the size of my 'John Thomas' I'm sure that's already as big as it gets. I seriously doubt uc would impact it.

3. That I won't be able to put on muscle or lose it quickly. I've already explained rapid weight loss during severe flares. When you're pooping 20+ times a day, you gain little nutrients from food and are too sore to eat really anything. It's essentially a prolonged fast.

Also I have this video link for you guys https://www.youtube.com/watch?v=cONYR7vAD-A

it is a video by a doctor called Dr Natasha McBride. She explains how food is the best medicine and how an imbalance of gut flora can cause autoimmune disorders and mental disorders. if you go on a GAPS diet for 2 years and heal the gut flora, it cures these problems. I thought she was a quack at first but too many people are saying this. Someone mentioned Jack Lallane. Well He said the exact same thing as her almost word for word about the relationship between food and the immune and nervous system. It is nearly 50 minutes long but sooo worth it just cut out processed food also and eat organic to feed the good bacteria and restore the balance of gut flora.

Way better than taking meds and healthier. I know this isn't a problem for me because we get free meds in England, but you guys in America must pay or be insured. I also found it funny how the company that makes asacol couldn't stress enough to keep taking it even when feeling well.There's hundreds of theories on what causes and cures IBD, individually they make sense within the limited set of variables studied, often these studies contradict each other. There's a ton of alternatives and they work for some but not all. The standard procedure is to use medications and explore alternatives, should they not work. The majority of patients are able to use mild anti-inflammatory medications, we'll tolerated, few if any serious side effects. The minority are able to use alternatives exclusively. No guarantees to work, everyone finds different ones work for them. It takes a lot of time and expirementation to find what works for you.