finally, scoping results, ominous?

Huh never heard of that one before. Try not to worry and see what the other specialists and future scopings see. Good you're at peace if this does end up as a colectomy. Keep us posted.

from my extensive 3 minute google education, i've determined that someone involved in your diagnosis must have had one too many before looking at your test results -

don't think you need to worry - all sounds bogus to me -

happy Sunday !

I would absolutely take it seriously enough to have another scope in 6 months...... I can't see that it's an imagined result. Just because something is usually found in a specific area....doesn't mean it's an impossiblity elsewhere, especially in a diseased colon.

You're always on top regarding doing your research......you have time to prepare for the outcome either way. Sounds like you have an awesome GI.

UC is the constant, but the other C is what we all fear I suspect.

Hugs,
q

Sorry to read that you're going thru these hassles, thumb included!!!!! A female friend of mine had this suspicious cell turn up in appendix during c-scope last Sept.; she does not have IBD, but her mother had died 20 yrs back at age 76 from colon cancer that metastasized to liver. The doctor said post-biopsy that he had removed what needed to be & advised my friend to re-scope in a yr! (She has been totally asymptomic otherwise.) *** On a cultural note, since you're in CT: I recently heard a wonderful new choral work by Yale PH.D. in music candidate Reena Esmail; it's ca. 50 minutes long & called "This Love Between Us: Prayers for Unity". Very moving & timely; she composed a prelude for Indian sitar + tabla, then 7 sections for choir, soloists from choir, orchestra, & some sitar/tabla, each section devoted to 1 of the 7 major religions of India & its main tenets praising brotherhood & unity. The work is being recorded by the Yale Schola Cantorum with Juilliard 415 + sitar/tabla players whom I heard; all were amazing! I hope you'll get to hear it, too. / Old Hat (36 yrs with left-sided UC; presently in remission taking brandname Colazal)

First off, I'm sorry you didn't get good results. Second, I know everyone tries to avoid surgery, so I will tell you a bit about my experience.
Back in 2005 I did not have UC. I thought I had IBS though since I would get a lot of pain in one spot. I went to our local clinic and blood tests would show and infection. The nurse practitioner acted like an infection in the colon was common, here are some pills. End of story.
I was 20 something and simply took the pills and went on. A little piece of me thought I should see a different doctor as the infections got more painful.
Well... 6 months after I had my baby, I had a flare up of the pain while on vacation. It was the last day and I said I would go to the doctor on Monday. The flight home was awful. I wanted to be sick from the pain, but on the drive home from the airport it just stopped. I was relieved, but the next day I went to the ER with incredible pain and fever.
Long story short...er I had diverticulitis, in my 20s! Crazy. Sad thing is it ruptured and had developed into a massive infection. The pain stopping was the abscess rupturing.
So, I had a colon resection and had to have an iliostomy while my colon healed. The first surgery was awful, but mind you, I had a terrible infection I was also battling on top of having a good foot of my colon removed. I believe most of the awfulness of that was the peritonitis I had going on. If it had been a simple colon resection, I read people say there wasn't near the pain they expected.
The bag was a bit of a pain, but I was also coming from a place where having an ostomy bag was a complete shock to me. Never had my nurse practitioner ever said anything like ruptured colon could happen, see a specialist... She just made it sound like an everyday thing, take some pills, you're fine.
Intersting thing happened around the 2nd week though, I got this ring thingy that would fill in all the odd edges of my stoma and it made a much better seal that didn't leak. No more leaking or irritation. I would go to the bathroom, then empty my bag if there was anything in there, clean myself up, wipe out the end of the bag with another piece of toilet paper, and it felt normal. Nothing hard around it at all.
By the time I had to have a scope to make sure everything healed normally, I never thought about my iliostomy. I didn't have to prep, since my colon wasn't connected. They just put a catheter in my stoma and flushed it... but the scope showed a completely normal and healed colon. If only I had known what was coming!
The second surgery, I didn't even need pain killers. No pain at all. It was a walk in the park.
I've been reminding myself of this because I too have been symptom free with my UC, but a scope last month showed cells indeterminate for dysplasia and I have to go back in a year to see if there is any further changes, or if it resolved. The question is always there, what if it's a cancer starting??
I tell myself, if it's still there, I will simply have my colon out. No more risk of a flare and hey, no being on the beach and needing to poop. LOL
I hope this helps you to feel better. If you do need surgery, perhaps it won't be that bad, and hey, you'll never have to poop while at the beach.

You're welcome. Yes non emergency surgery is far better. Did your doctor give you the option of just proceeding with surgery? I know some doctors urge that.

Jelly - I think he really wants to scope it again first t see what he can see. And to be honest... 18 month ago or so, path results showed a serrated polyp, also ominous - but he never again saw evidence of that and actually suggested it was " a figment of the pathologist's imagination." So, given that, I don
t have tremendous faith in the pathology result. Certainly not enough faith to schedule surgery as a result of that one report!

OH - I looked and saw they have done that concert in NH on March 3. Rats. But I'll keep looking, and maybe they will do the piece again. I get the Schola listings via email. We had another event on March 3 or we might have gone!
I agree about JSB. Actually, Playing JSB on the organ is some of the best therapy I've ever had. It does the same thing to my mind as a long session of visipanna meditation! Thanks for bringing me the thought. I haven't sat at the organ and played for a long time. It could help.
Of course, my thumb is a bit of an issue....lol

I hope it is all clear for you then. I know how scary it is to wonder if you have cancer. Sometimes when I hear about so many people getting colon cancer at young ages who had healthy colons, I wonder how many of us would have gotten cancer anyways, but we're scoped so much they catch it early.


So, I worried about my indeterminate for dysplasia and if that meant pre cancer. Everywhere I read said rarely, but looking up dysplasia says it's pre cancer.
I usually stay off google because there is a lot of junk out there that is just scary and not true. I couldn't stand it anymore and I looked. Good thing since the NIH site and Mayo clinic site both said that when it comes to indeterminate it's inflamation that is causing changes and the pathologist takes a guess if it's turning to cancer or not. If it looks like plain inflammation, they say come back in a year. If it looks more like pre cancer changes they say come back in six months.
I suppose I could have made an appointment with my GI to ask him but my co pay is 80 dollars for that, and insurance is making me pay 2300 of the scope. Sigh. Anyways the doctor said I am good for a year.
I hate how our insurance has changed so much. I used to only pay a couple hundred.