Just changed healthplan and connected with new GI. Just started my new flare with the new doc. I feel a little nervous. She seemed very nice, but in reviewing my medical records a few months ago, she said something about
me being lucky I don't have that bad of a case. It's true. I come here and read some of the suffering people go through, and feel very blesssed I've had years of remission. But it makes me nervous, too. It's not like some easy fun illness. The first time I had UC it was not "that bad" but into the sigmoid, and I was having blood, diarrhea 10x per day x 6 mos. it sucked! i had accidents. Had a couple short term flares since, that got under control within 4-6 mos. My last scope showed only proctitis last year. Even so, I was 4-6 times a day with loose stool, bleeding and nausea, vomiting. Now, in new flare ...I have 4-6 x Bm, urgency, minor bleeding, occasional nausea and fatigue.The new GI would like me to do a bunch of stool studies... o&p, rule out C.Diff, etc. New one is fecal calprotectin? It better show inflammation, because what I am going through is not normal for me. I just feel nervous because it can get worse so fast. Seems like sometimes I have a good day and then back to more bleeding, more bathroom trips, etc. Makes me feel kind of like they don't believe me...my symptoms are mostly in the am, and sometimes after meals. Urgency and tenismus. Blood. I feel like I am having to prove myself?! They said if all results come back clear, maybe I can try burst of steroids. Canasa helps with the bleeding, but not the other symptoms. Just looking for others who can nod in understanding I guess. Do your GI order stool studies after diagnosis? I know it's not an infection. I know the symptoms all too well. It seems weird they want to order stool studies, when I have the classic symptoms and history. Whatever. I will do it. You know you are sick when you are living in the restroom and cannot seem to leave it.
