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UC or Microscopic colitis?

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Ulcerative Colitis
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Posted 3/30/2018 4:01 PM (GMT -5)
Hey guys! I've been thinking and even asked another doctor about my condition. The 2017 scope showed I had active chronic moderate colitis with ulcered epithelium. But the 2018's showed "No signals of current or previous inflammation" Something like that (in portuguese). Biopsies showed active chronic moderated colitis, this time with no ulceration of the epithelium. One polyp was found and designated and chronic moderated colitis taking a polypoid form, on the ileum region. So what colitis do I have? UC? Microscopic? Alergic? ...?

Also in the ileum they found folicular linfoid hiperplasy. Is it backwash ileitis?

Post Edited (marcell) : 3/30/2018 3:17:27 PM (GMT-6)

Posted 3/30/2018 8:21 PM (GMT -5)
UC is classified based on the worst extent and severity you've had. Currently it sounds like your flare is at the microscopic level. What's the worst it's been in extent and severity?

It's only backwash for pancolitis patients.
Posted 3/30/2018 8:28 PM (GMT -5)

iPoop said...
UC is classified based on the worst extent and severity you've had. Currently it sounds like your flare is at the microscopic level. What's the worst it's been in extent and severity?

It's only backwash for pancolitis patients.

It's pancolitis. The worst I ever had showed active chronic colitis with exulceration of the epithelium. By what I read, exulceration is not as bad as ulceration, which would be way deeper. That's my worst.
Posted 3/30/2018 9:36 PM (GMT -5)
Microscopic colitis is either lymphocytic or collagenous....each showing specific issues at a microscopic level and not obviously seen visually during a scope.

Exulceration means in the process of ulceration, but basically it is obvious inflammation visually that has progressed past a mild stage. Were you bleeding? Ulcerative colitis ulcerations are teeeeny tiny and can bleed easily depending on the severity and progression of inflammation. Ulcers are deeper....not all have their inflammation extend to deeper ulcers. Not all inflammation in UC is ulcerated......it happens in increments.

Because your inflammation has healed to the point of no ulcerations, it was still active inflammation.

No, not microscopic colitis. The visual notation might have meant not as bad as previous scope. But still active.


Regarding the ileum lymphoid follicular hyperplasia....I found a question asked by someone and then answered by a doctor that you might find helpful.

/www.doctorspring.com/question/lymphoid-hyperplasia-of-the-terminal-ileum

q
Posted 3/30/2018 10:40 PM (GMT -5)

quincy said...
Microscopic colitis is either lymphocytic or collagenous....each showing specific issues at a microscopic level and not obviously seen visually during a scope.

Exulceration means in the process of ulceration, but basically it is obvious inflammation visually that has progressed past a mild stage. Were you bleeding? Ulcerative colitis ulcerations are teeeeny tiny and can bleed easily depending on the severity and progression of inflammation. Ulcers are deeper....not all have their inflammation extend to deeper ulcers. Not all inflammation in UC is ulcerated......it happens in increments.

Because your inflammation has healed to the point of no ulcerations, it was still active inflammation.

No, not microscopic colitis. The visual notation might have meant not as bad as previous scope. But still active.


Regarding the ileum lymphoid follicular hyperplasia....I found a question asked by someone and then answered by a doctor that you might find helpful.

/www.doctorspring.com/question/lymphoid-hyperplasia-of-the-terminal-ileum

q

Not much blood, no. Last year when I felt a lot of "pressure" to go to the toilet, there was blood in TP. But I can't be sure if it's due to hemorrhoids or colitis.

By his answer, could we understand that I have Chron's?
Posted 3/30/2018 10:55 PM (GMT -5)

quincy said...
Regarding the ileum lymphoid follicular hyperplasia....I found a question asked by someone and then answered by a doctor that you might find helpful.

/www.doctorspring.com/question/lymphoid-hyperplasia-of-the-terminal-ileum

q

So is it backwash ileitis?
Posted 3/30/2018 11:35 PM (GMT -5)
It's not backwash, but possibly a result of.

I suggest you do research and have your doctor clarify.

q
Posted 3/31/2018 11:09 AM (GMT -5)

quincy said...
It's not backwash, but possibly a result of.

I suggest you do research and have your doctor clarify.

q

In the rectum thy use "active chronic moderate rectitis". That the same as the colitis? Or rectum sparring?
Posted 3/31/2018 11:58 AM (GMT -5)
"Rectitis is an inflammation of the rectum, more specifically of the rectal mucous membrane, in other words the interior lining of this digestive tract. This condition can be acute, temporary, and rapidly healed, or indeed chronic."

You have ulcerative colitis, pancolitis. All of these other words are medical jargon, all pointing to UC.
Posted 3/31/2018 1:26 PM (GMT -5)
And active means flaring.....are you on meds?

q
Posted 3/31/2018 3:03 PM (GMT -5)

quincy said...
And active means flaring.....are you on meds?

q

No. I'm not feeling anything bad. I have some pain because of gases though. When I fart it goes away. Ever since I cut flours, dairy and refined sugar, bowel been acting normally (I forgot how it was to have 2 moves a day. I had just one before. And now stool is soft and normal, as it should be). After 2 months I'll scope again. If it's still active, I'll take the meds, for the sake of NO CANCER. Also, my bloodwork came with huge improvements. That's why I'm giving diet a chance. Maybe meds won't be avoidable one day. But maybe this is not the day. As doctors don't know a lot about it and it varies hugely from person to person, then I think it's a good idea to try. Let's see how it ends.
Posted 3/31/2018 11:16 PM (GMT -5)
Well, you keep us posted.
Active means inflammation.....that means flaring in my perspective.

q
Posted 3/31/2018 11:49 PM (GMT -5)

quincy said...
Well, you keep us posted.
Active means inflammation.....that means flaring in my perspective.

q

I will keep you posted. Will take a while for me to get a scope again (around 2 months or a little bit more). I'll do the blood work before and see if I have any symptons. When both are positive and after 2 or 3 months, I'll let you all know what my biopsies say.
Posted 4/1/2018 8:35 AM (GMT -5)
Regardless of outcome of your diet (good or bad), I would recommend you take a daily 90% topical, oral mesalamine (asacol, lialda, mezavant) as a maintenance treatment. Why? Mesalamine as a maintenance treatment reduces our colorectal cancer odds. As UC patients, our colorectal cancer odds are normally increased.
Posted 4/1/2018 12:12 PM (GMT -5)

iPoop said...
Regardless of outcome of your diet (good or bad), I would recommend you take a daily 90% topical, oral mesalamine (asacol, lialda, mezavant) as a maintenance treatment. Why? Mesalamine as a maintenance treatment reduces our colorectal cancer odds. As UC patients, our colorectal cancer odds are normally increased.

Yeah one of my doctors told me to take 800 mg a day. She told I have nothing if comparing to people with a real bad disease. That's why she was giving 800 mg. But I read some papers and there is no proof that mesalamine lowered the number of cancers being developed. Correct me if I'm wrong, but I read many of those papers, hoping to see anything positive about this med (which seems to be safer because it acts on the intestines only).
Posted 4/1/2018 11:35 PM (GMT -5)
Make the decision on your own.....i can't see that one needs to justify being on mesalamine.

I've been on it for 29+ yesrs, but haven't had a diagnosis of pancolitis.

A doctor who belittles one's disease to another's doesn't have either's as a main interest.

q
Posted 4/2/2018 9:42 AM (GMT -5)
There's more studies showing mesalamine helps than does not. Anyone can cherry-pick bad news about a medicine if that's the outcome they want to find.
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