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Good grief, is this in fact UC?

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Ulcerative Colitis
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Posted 8/4/2018 2:22 PM (GMT -5)
First, I have not been having normal BM’s on a regular basis. I might go every 3 to 4 days. Then after I go my tush hurts like hell for a few hours after the BM. In between what I am experiencing is so disgusting I hate to even discuss here. If I feel the urge what is coming out is a bloody mucous filled poopy mess, all in liquid form. Happens everyday, several times a day. I feel very tired, no appetite, and some days I can’t even get off of the sofa, unless it’s to run to the bathroom. I’m seeing a new colo-rectal specialist this week because of the pain I have in my rectum. Some days I feel good enough to get on with my life but today has been just awful. I was diagnosed with UC in 2017 but am currently not on any meds. Mesalamine capsules as well as the enema didn’t work for me. Can’t honestly say Canasa suppositories did a whole lot of good either. Of course I’ve been on Prednisone several times since I was diagnosed. I’m just concerned that it might be something more serious than UC. Thanks for any input!
Posted 8/4/2018 2:40 PM (GMT -5)
Totally sounds like UC and tenesmus to me. it's good you're seeing someone this week. I think you should try some more rectals, maybe uceris foam, or steroid supps/enemas. What are you taking for your UC? You do need to treat it with something so you can eliminate the symptoms. It's interesting how some people say they constipated when they are going a few times every day. it seems like people's ideas of what constipation is, are different. I think if I have the urge multiple times a day, and something comes out, even if it's not a "poop", it's a BM. I would count each of those trips and say i have D!!! I guess when I think about it though, barely anything came out, so it could be viewed as unproductive or constipation too.
Posted 8/4/2018 3:49 PM (GMT -5)
Currently not treated with any meds. Is Tenesmus something that will resolve with meds or is this something I have to live with? Does Tenesmus cause the rectal pain? The pain is very uncomfortable to say the least.
Posted 8/4/2018 6:41 PM (GMT -5)
It will resolve when you're in remission. I always had it badly when my rectum was inflamed. it makes you have to go over and over, sometimes when you're empty even, and it feels like there's a lot of pressure in there. It's very uncomfortable to say the least, it's frustrating as hell too. Rectal meds can really help, but ultimately, you need to get into remission in order to stop it from happening, whether that's achievable with rectals, is what you need to explore.
Posted 8/5/2018 12:18 AM (GMT -5)
You are flaring and yes....the joys of flaring. White- knuckling butt- puking flaring.
Rectal meds....if mesalamine doesn't help, try steroid liquid, foam, suppositories or a combo of them.
Antispasmodics help bigtime.
q
Posted 8/5/2018 6:02 AM (GMT -5)
You can try adding 3g of curcumin to your mesalamine treatments. Google will give you some research on the subject. In a few studies, 3g of curcumin added to mesalamine was able to induce remission in 50% of those patients who were originally unresponsive to mesalamines.
Posted 8/5/2018 6:15 AM (GMT -5)

U Charlie said...
In a few studies, 3g of curcumin added to mesalamine was able to induce remission in 50% of those patients who were originally unresponsive to mesalamines.

Great information, thanks. Do you remember where you found this?
Posted 8/5/2018 6:29 AM (GMT -5)
One last question.......currently experiencing a serious personal issue (marriage over after MANY years). Will your emotions take a toll on the UC? Yesterday I felt so bad I didn’t leave the house but stayed on the sofa most of the day. Have to go out today to buy of all things......toilet paper.
Posted 8/5/2018 9:26 AM (GMT -5)
Great information, thanks. Do you remember where you found this?
3g seems to be the magic number. Studies at lower doses did not show statistically significant benefit.
https://www.ncbi.nlm.nih.gov/pubmed/25724700

This one studied maintenance of remission at a lower dose (2g) and found little to no statistical difference between curcumin and placebo, but fewer relapsed on curcumin.
https://www.cochrane.org/cd008424/ibd_curcumin-for-maintenance-of-remission-in-ulcerative-colitis
Curcumin enemas:
https://www.cochrane.org/cd008424/ibd_curcumin-for-maintenance-of-remission-in-ulcerative-colitis
Posted 8/6/2018 7:31 AM (GMT -5)

Imbeccak said...
One last question.......currently experiencing a serious personal issue (marriage over after MANY years). Will your emotions take a toll on the UC? Yesterday I felt so bad I didn’t leave the house but stayed on the sofa most of the day. Have to go out today to buy of all things......toilet paper.

Sorry to hear you're having relationship troubles on top of a UC flare, talk about a one-two-punch :-(
Yes, stress is the most frequently mentioned trigger of flares. Periods of prolonged stress that goes on for months can sometimes trigger a flare. Not sure if it is the stress itself, or the other things adjunct to it: we sleep worse, eat worse, etc. Stress isn't guaranteed to cause flares, by any means. Certainly it's good to limit the stress in one's life as much is possible (avoid high-drama people, limit work stress, etc.) but stress is an unavoidable part of life and therefore not completely avoidable. Coping with stress, not dwelling on it, and finding healthy outlets to unwind are key.
Posted 8/6/2018 12:57 PM (GMT -5)
Relationship issues.....top of the list regarding stress bigtime.
q
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