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Remicade and ravenous hunger??
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Ulcerative Colitis
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Celeriac
Regular Member
Joined : May 2017
Posts : 197
Posted 5/1/2019 9:36 AM (GMT -5)
Just got my first maintenance dose of Remicade last week (it had been going well until about
2 weeks before my recent infusion when I started to backslide, now it’s improving but much more slowly than I’d like; they make shorten my infusion intervals or increase dosage) and I am fricking starving, round the clock.
I noticed this after my second loading dose, and it finally started to subside after my third. I figured it was just me feeling better and getting an appetite back but now I wonder if it’s the Remicade itself ...?
In the pantheon of potential side effects this is not a huge deal. Just curious. Because I’ve always a decent-but-not-excessive appetite, and I’m subject to episodes of hanger on my best days, but I’m like one step from omnivorous zombie at this point.
iPoop
Forum Moderator
Joined : Aug 2012
Posts : 16495
Posted 5/1/2019 9:40 AM (GMT -5)
Ravenous hunger makes me think of prednisone, or perhaps just feeling better. Hunger is not a known side effect of remicade to the best of my knowledge.
Celeriac
Regular Member
Joined : May 2017
Posts : 197
Posted 5/1/2019 9:45 AM (GMT -5)
Yeah I haven’t seen it listed—and I agree re: prednisone, though that typically makes me less hungry, and I’ve been off it for over a month.
I haven’t been feeling so bad lately that my appetite’s been affected, which is why I was questioning feeling-better theory this time around. It’s just so weird and such a marked difference.
It was admittedly much more welcome when I was trying to regain the 20-odd lbs I’d lost but uhh ... now that that’s taken care of ... 😂
poopydoop
Veteran Member
Joined : Dec 2018
Posts : 2081
Posted 5/1/2019 9:57 AM (GMT -5)
I've been having ravenous hunger in the last few weeks too (on xeljanz), i put it down to being nearly in remission...
iPoop
Forum Moderator
Joined : Aug 2012
Posts : 16495
Posted 5/1/2019 11:52 AM (GMT -5)
It's fun when you're 20-pounds underweight and in remission and hungry, as you can eat anything without worry (have a sinful desert of chocolate cake at a restaurant without guilt while your friends are mouth a gasp). Afterwards, it's hard being at your target weight and eating responsibly, cuz you're so used to not being careful.
Celeriac
Regular Member
Joined : May 2017
Posts : 197
Posted 5/1/2019 12:03 PM (GMT -5)
Poopydoop: YAY!!! 🙂
iPoop, you speak the truth. 😆 I think I survived on chocolate for a solid week once I started to feel better, since it always seemed to make matters worse when things were bad.
poopydoop
Veteran Member
Joined : Dec 2018
Posts : 2081
Posted 5/1/2019 2:24 PM (GMT -5)
Thanks!
I still have to go through the obligatory dose reduction, which I am trying to delay as long as possible as I'm afraid of getting sick again.
It is weird to experience being hungry again though. Even on prednisone it wasn't like this.
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