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Posted 6/13/2019 5:21 PM (GMT -5)
I am pretty bummed out. Been on Entyvio since October (treatment is every 8 weeks) and everything was fine until last 3 weeks or so. I first noticed that I was having more bowel movements but nothing else was out of the ordinary. Then yesterday, I noticed blood and mucus and it continues today. I live in NYC and Florida and will be flying back next week to see my doctor to talk about options. I thought the Entyvio as working as I had no flare ups previously.

I have been fortunate in that even though I have had UC for 30 years, my quality of life have not suffered. The UC was in remission for much of it but the last five years it has still been there although I have not experienced the worst symptoms (diarrhea, cramps, etc.). This is a setback and I am for lack of a better word upset. Curious if anyone has any suggestions or thoughts.
Posted 6/13/2019 6:47 PM (GMT -5)
Everyone flares eventually. Run-of-the-mill flares are easily conqured by temporarily use of steroids.
Posted 6/14/2019 6:33 PM (GMT -5)
It happens. I've been on Entivyo with successful remission until two weeks ago. Ate something bad and triggered the diarrhea. Now just trying to get it under control but I can def tell that there is less blood in general compared to the other times I've gotten flares before the biologic. Stay strong!
Posted 6/14/2019 7:02 PM (GMT -5)
My husband did great on entivyo...for about 8months. Then came on a flare that just never got under control. You may just need some prednisone to help get things back working again if you’re not too severe with your symptoms! Hope it keeps working for you.

I think you can ask your GI to run a test and see if you’re developing antibodies to it. If so, it may be time to switch up the dosing or meds.
Good luck!
Posted 6/15/2019 7:45 AM (GMT -5)
I did well on Entyvio for about 18 months and then it just stopped working.
Posted 7/16/2019 10:56 AM (GMT -5)
If you experience flare on Entyvio doesn't that mean it is no longer working. Has anyone flared up and continued taking Entyvio?

I started Entyvio April 2018. Worked great for a solid 6 months. For the past month my UC started going downhill. Now I have been in a flare for a few weeks. My next Entyvio appointment is scheduled in August but probably will cancel.
Posted 7/16/2019 11:49 AM (GMT -5)
I was in a solid remission on Entyvio for about a year and started flaring. Had a difficult time getting my doc to check my levels (took 4 months before they would do the blood test). By the time they did the test I was flaring pretty badly and my levels were almost non existent. Doc then increased the frequency to every 4 weeks instead of 8, but I think I was flaring too badly by that point and it didn't help at all.

Sounds like you had success with Entyvio and aren't flaring too badly right now. Get you doc to check your levels before your next infusion. If the levels are low and you don't have antibodies maybe if you change the frequency to 4 wks that might do the trick. If you show therapeutic levels and no antibodies Entyvio just might not be working for you and you might need to try something else.

I really loved Entyvio so hoping you have better success with it than I did

Good luck!
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