I think I’m in remission:)

I probably should wait until later this afternoon to post this after I (FINALLY) see my GI. I’ve been tracking my symptoms for three weeks and I’ve had no pain, only mild ‘noticing’ sometimes, no bloating, a little bit of diarrhea a couple of times, and no bleeding. I also saw nothing alarming in my recent lab tests (except for low iron).

I’ve been following an IBD AID diet for the last few months. I think it’s a good diet for me for a variety of reasons but the high fibre is effecting my BM’s which I’ve become obsessed with over the last few months, so thecdiet might also be contributing to my mental instability yesterday I had a veggie sandwich with bread, baked lays (so delicious! I just love potato chips!!!) and a few wheat crackers with cheese in addition to my usually eating, and this morning I had a “normal” BM.

Thanks to the support here, I have been able to get through a semester of school and go to work without talking incessantly about my health (IRL). I’ve been very anxious since July about being prescribed prednisone without medical council and this group helped me figure out I needed to get a prescription for pentasa, and that I’m probably sensitive to mesavant, while my GI was on vacation, and continue with the suppositories when I wasn’t sure what I was supposed to do. This group has also helped ease my fears (with humour, great sharing, suggestions, and reality.

It’s hard to share with people. I get told a lot that i need to eat differently or go to a naturopath. After my second acupuncture visit I’ve had two weeks of occasional stabbing pain in my right palm and a lack of feeling there 🙄.

I’m very grateful to you all. I don’t think I’ll be going on biologics this week. But if I do in the future, I know I can share all the things, and that there is support. ❤️

Great news Rosie! I’m so glad you’re feeling better.

This group helped me so much for all the reasons you stated. There’s just nothing better than sharing pain and fear and small victories with people who truly understand. I have a great family and friends but they don’t understand the intricacies of this disease. And I find it hard to tell them some of the more gross and embarrassing details. All the practical experiences everyone shares are so helpful!

Not in remission here according to my doctor.
My doctor said that symptoms don’t tell the whole story; the colonoscopy showed inflammation at the other end of the large intestine too. She said that this is more like crohns.

Calproactin was 100, which my GI said is in the green zone, but she thinks it’s lower because I just came off prednisone. She gave me a standing order for lab tests every three months, and she said I’ll go for another colonoscopy in a year. She gave me a booklet on inflectra and told me to make sure my immunizations are up to date and I get that TB test. I will see her in three months. She thinks the lab tests will show inflammation markers rising steadily. She said that pentasa is not a really effective for
Crohns

The plan now, is I keep taking my meds for three months , then get my lab results. If the inflammation markers go down yay! If they go up: biologics.

You weren't in remission when you had your scope. How long ago was that? You could very well be in remission by now. Hope that you continue to do well!

I am pretty sure that I read that sometimes UC can have a pattern like what you described so it may or may not be Crohn's. For now it doesn't really matter -- the meds are pretty much the same for Crohn's & UC and Pentasa is used for both.

Enjoy feeling better and try not to worry about what might happen in the future. Today you feel good!!

I just had a colonoscopy on November 15th. I have a similar pattern as you although it was not inflammation but vascular abnormalities. Waiting on my Dec 16th follow up appt. I have always felt my symptoms seemed more like crohns but as far as I know, my doc hasn’t changed my diagnosis.

I hope you are on your way to remission. Sorry you had to join this forum but it’s great to be able to get support from others in the same boat.

I am at a point where I’m getting my iron levels up, feeling better and I’m thinking again that I might be in remission with just the 5ASA’s. Acceptance that my GI might be right and getting ready to go on inflectra might be part of the reason my symptoms subsided this weekend. The day after my GI appt, I had pain for hours, used heat etc. It wasn’t as bad as other episodes, but bad enough to be my main focus all day. Then, I decided a top down approach is alright with me, I probably relaxed a bit, and I’ve been feeling better since Friday. Surely my complete inconsistency and doubt about what’s going to happen next isn’t unusual with IBD.

You said the fettucine alfredo your husband made you could have also caused those symptoms, right? I definitely think it's normal to feel a lot of doubt and uncertainty with this disease. It's impossible to predict when it will flare up or how badly or which meds we will respond to. So much uncertainty and so little we can control. I'm glad your energy levels are up!

Oh Rosie, congratulations ))