C-Diff positive

Omg!!! I was wondering how you were doing today, so I'm glad to read an update.

First, I am so happy to hear you are feeling well! Yes, I'm sure not eating for several days, combined with not one, but two, preps definitely had something to do with not pooping for a few days. Sorry you had to miss your 5k, but there's always next year.

Second, I am super happy to hear you got in to a new doctor and that they are only two miles from your house AND the appointment is so soon is really freaking amazing! I hope they are an amazing doctor and you really like them.

Third, I can't believe how crappy your current GI and that hospital have been throughout all of this. That really sucks. Your Grey's Anatomy comment made me smile because that's one of my favorite shows! Lol.

Wow, 9 years with c diff. I can't imagine. And you are so right that we appreciate life more than "normies."

Thx Sara. I seriously couldn’t wait to share the news with you as I knew you would get it. I have a video chat with my docs nurse in two weeks which was scheduled as a follow up when she thought I was in a flare. I am considering demanding to meet with her directly. I am nervous to rock the boat until I secure my new doc in case my cdiff comes back.... I did request ALL of my records so I have them. Stanford also pulled them so they have them too. It seriously feels like Xmas.

As for grays I have watched every season. I think my fellow Sunday night was the guy with the glasses. You know the one dating the Asian doctor. Hahaha. Glad I can laugh about it. What a nightmare

Flowergal hello from California! I went to cal poly so not so far. I hope you have a good doctor. If you ever need to be hospitalized at UCSF just be very aware that they are a teaching hospital and question everything. They don’t know anything and aren’t well supervised. I have been with my doc for 15 years and her care has really gone downhill. Likely overworked(I refuse to think she just doesn’t care as she used to be so good!)

Hi Jen -- hope you are continuing to feel better and getting your stamina back. Great news about getting the appt with the new doc! Your current doc sounds too busy to have time to really care or follow-up. It's unacceptable that they take over a week to respond to an email. Even if she's on vacation she should have someone covering for her. Have you tried calling?

I'm so happy to hear that! That paranoia should dissipate with time. It did for me. I'm still extra careful to try to avoid touching door handles at hospitals and doctors' offices and I wash my hands immediately after leaving the hospital. You did go through a lot!

I've been better, lol. I'm still on 30 mg pred., so I don't know if I'm in remission or if the Humira and Imuran are helping yet. I'm tapering down to 20 mg next week. I'm not really having UC symptoms, but I feel pretty terrible most the time, I think from side effects from the Imuran. I'm having nausea every day, lower appetite than normal, and am tired, bloated, having terrible moon face, and I got a stress fracture in my foot from just walking 2 miles, so I'm very worried pred has destroyed my bones, and I can't even go for a walk now since I'm in a walking boot so that has me pretty down. Waiting to get a bone density scan. I'm hanging in there though. Thanks for asking.

Sara I really really hope you are feeling better. Being sick for so long becomes your new norm and it sucks so badly.

My energy levels are still not back. I did a video conference appt with the medical assistant at UCSF and she was the first caring provider I have talked to in months. She said she would have my doctor call me...crickets

I met with my new Stanford GI today. Omg!! Five minutes from my kids’ school, brand new facility, super nice doctor, lab work done on site in 5 minutes, and they do c-scopes right there. I am seriously in heaven. If there is a silver lining to horrible c-diff it was the horrible care I received and the push I needed to finally research other doctors. He is going to run labs to see why I still am not 100% energy. Maybe minor flare with no symptoms? He also proactively mentioned probiotics(specifically Floraster) which I am already taking so seems good. We will see. Would love to be back to normal but I know I shouldn’t complain as being really really sick is so much worse

Thanks, Jen! I skipped my Imuran last night and have not refilled the script. I am going to see if that makes the nausea and overall unwell feeling go away. I had some mild nausea this morning still and took a Zofran, but I've been fine so far the rest of the day. Yes, I completely agree that it becomes a major problem when feeling unwell becomes your new "norm" and you start to almost forget what it's like to feel normal.

I'm really happy for you that you found a great new doctor. I felt the same way when I got campylobacter and then c diff. It led me to being hospitalized which led me to a wonderful GI who even gave me his cell number, which I thought was just unheard of. Unfortunately, he moved out of state a year ago but my current GI gives me pain meds when I need them, so that's probably even better than a cell number. Lol.