What to do?

Happy New Year Everybody, thank you all for the support.

So I saw my (not so happy with) GI Dr. A month ago who said I was only constipated and took me off Pentassa enemas and told me to use Metamucil. I started the Metamucil and became bloated and had bad gas. I still continued to pass bloody mucus and some mushy poop. So I stopped the Metamucil after a week. I had been eating a little more holiday goodies which haven't helped.
However I stayed away from raw Vegetables and fruit.

I have had maybe a weeks worth of "normal" feeling days without the urge to go or passing gas or diarrhea in the last month. I have a colonoscopy on the 14. This week I have had at least 4 to 6 mushy mucus poops with urgency. Even in the middle of the night. I started Metamucil again last night, just for the sake of doing something. However, would it be ok using the enemas again? I have 14 left.

At the same time, the eczema is flaring in my ears and I have sinus issues. Also my pinky finger is swollen, sore and numb. Are theses just manifestations of UC?

Any thoughts would be appreciated....Sassy

I really like psyllium, both seed and husk. I do not take a lot, start small and see what works for you.

Thanks,
I tend to over Dx myself, so am afraid to listen to my body. I only used a 1/2 teaspoon with a full glass of water to chase before bed. So do I need more water? I drink at least a litre a day, maybe that's not enough.

And judging by the sore achy butt I have now, after the 7th trip to the can, I will resume the enemas tonight.

You're getting scoped on my birthday.

I don't know why your doctor said it was only constipation. Sure doesn't sound like it.

If you're having 8 bms a day, then your rectum is likely too inflamed to retain mesalamine enemas successfully for 7+ hours. You're going to need steroids to calm things down and heal before you'll be able to retain mesalamine enemas for any length of time. Your choice of steroids: Pred, Uceris/Entocort EC, or steroid rectal foams like Cortifoam.
I would not take Metamucil with that kind of frequency, as the last thing you need is to bulk up your stool and make it abrasive (as fiber tends to do).

8-bms is pretty severe though, you are most likely needing prednisone which is great for severe inflammation. Hoping you are in regular contact with your gasteroenteroligist throughout this. You can get an inflammation test to see where you are at, like Calproctectin, probably a good idea at this point. No harm in it at all.

Post Edited (iPoop) : 1/3/2020 7:32:18 AM (GMT-7)

I emailed My GI's office with a detailed message. But they only take appointments booked already on Fridays, so I may not hear from them. I did what you said Rosiedays lol hopefully I will hear back. I definitely want this better before our trip!

Hi Sassy, glad to hear about your improvement. If it was me I’d stay on the enemas. A few good days isn’t necessarily remission in my experience and the fact that you are going less means better retention for the enemas.

Unfortunately, there's a lot of guesswork and frustration (at our incompetent dr at times lol) in all of this. Try not to change a whole lot of variables simultaneously as then you cannot ascertain what caused what to happen.

I'd try and stay calm and look for trends more than one-day erratic changes.