Xeljanz put me into remission!!!!!

I'm so happy you're feeling better. And it just shows you that migraines and allergies are all linked together

Thanks Andrea! I started getting some sniffles yesterday so I went ahead and took my allergy meds. It honestly feels weird not to take them after taking them for 10 years straight, plus another 10 years as a kid when we had cats, so I haven't done a full experient yet, but they are definitely significantly better if I can go 24 hours without them.

countess: Lol! Thanks so much!

Great to hear, Sara. Always good to hear success stories!

Oh that's great, even at the lower dose you are doing well!

Yes I really hope that you get many years out of it!!

Thank you, countess and nssg!

Thank you, limey! I'm glad it is working well for you, too. My boyfriend has been in remission on it since 2019 as well. I so hope it works for me that long (or ideally longer, lol).

Considering you're tapering off the Delzicol, I think a c-scope this summer would be good.
I would taper down by 2 each time until you're off.

Great news Sara!

q

This is going to be my last week on oral mesalamine. In Dec my doc said I could just stop it, but I was too nervous to do that so I have been tapering. In Dec I went down to 4 tablets, early Jan went to 3, late Jan went to 2. This week I had 8 tablets left in the bottle so I am doing 1 tablet every day (except 2 on Wed) just to get them used up. Next week will be the first time since I was diagnosed without oral mesalamine. So far everything is fine.

I think you will be fine on the taper the doc said to do ... or make up your own if you want to go faster or slower. It's not likely it's doing anything for you, but you never know. You can always add it back if you see any sign of UC. So glad Xeljanz is working so well for you!! Remission is wonderful

PA and Faith: Thank you! Yeah, I'm doing the taper slower than he recommended already and he was fine with that. He originally told me to just go down to 6 pills a day right away since I told him I had been missing several doses a week lately anyway with no ill effect, but I asked about starting at 8 first. It helped me for years, so it is a bit scary to think about quitting it, but it would be really nice to take fewer pills! My GI said most people on Xeljanz do fine getting off mesalamine.

Countess: I'm with you there, but they make me get them every 2 years now to check for cancer since I've had UC so long. But I still want to hold off at least until the 2 year mark.

Yes, I did. And it made my flare much worse. Sometimes I'm not affected by scopes, sometimes I am. Maybe if I'm in a solid remission when having one, it won't be an issue.

Thanks, q.