Symptoms returning on Inflectra….

It's very much worth asking to move the infusions closer together. Depending on how good your drs office is at appeals will determine moving the infusions closer together. What symptoms are you having? Symptoms returning at the same time frame should be the forefront of the appeal. I am a little hesitant to think they would approve an increase in the meds, but you just never know. Again, keep in mind, the dr instructs a staff member what to say in an appeal. Discuss both options & see what he thinks is the best way to move on this.

Sorry you are having problems. Good luck.

CC has moved her remicade infusions to 4 weeks and achieved remission that way. (If I’m remembering correctly). Maybe she’ll pop in to answer. If not you could check her posts. I think her signature is ccinpa

I’m glad to hear you had success after some tweaking of the medication. I hope the same can happen for me. I’ll definitely talk to him about all of this.

Has your doc thought about ordering a second therapy like methotrexate to the mix?

Did you have any antibodies according to the test?

I am on Remicade. I was not responding as well. We have had me on mono therapy, then added methotrexate, I started responding better, methotrexate made me ill.for 48 hours after I took it so we stopped the methotrexate, my response went down again so we had to add it back in. I now take methotrexate on Friday evenings so my next week is not impacted. Infusions we're at 8, then 6 then 4 weeks.

My trough levels were low ... At 1, and my antibodies were high. With the methotrexate they are at 4.7 and around 3 or 4 on antibodies. Vast improvement. The numbers have improved monthly. He said once my trough levels get higher I should not have any difficulty during my infusions and my response should improve even more. We will then move infusions out by a week, wait til I stabilize and move it out another week--until we are out as long as possible. We've done this several times since 2015.

On the other questions, I haven't had any issues getting my doses changed--or the frequency. And my doctor usually increases dosage or frequency before moving on.

I hope you feel better soon!
Clo

Are you taking Budesonide in oral or rectal form? I've been taking it in rectal enemas (Uceris) and if you can manage to do it correctly and successfully, it really can help to lessen the bleeding.

Saw my doctor today and we’ll be moving my infusions to every 4 weeks. They’re submitting to the insurance today and fingers crossed they’ll approve without a fight