Leaking - is this normal?

I’m sorry for the multiple posts with all the questions, this is all new to me and I just need some answers/reassurance as I am literally getting nowhere with my consultant.

Leaking mucus - is this completely normal for UC

Some days it’s minor, just a little bit. Either brown or like a red tinged colour
Other days like today it’s horrendous, anything I do I just feel wet, run to the toilet and find myself covered in it. (Sorry to sound gross) what causes this? Any ideas on how to help?

You are flaring with ulcerative proctitis or u. colitis! Brown-tinged mucus has excrement mixed-in. Red in mucus = blood. Why you feel wet many times is because mucus also comes out if/when you expel gas. It's a very nasty symptom of mucosal inflamation/ulceration, and especially hard to wash out of soiled underwear! We used to have many posts on this topic during my early years on HW forum. Members who had joined before me already had given ironic nicknames to the offending leaks: "shart" = mucus containing crap, and "blart" = mucus with blood. *** It seems that you need to affiliate with a gastroenterologist who understands IBD and reliable treatments, and to drop your present "consultant" who isn't helping you to get the proper medication. You're in the UK, right? That's one of the countries where UC patients have access to Rx mesalamine retention foam, besides the liquid retention enemas. Probably you need a script for those now, but if your symptoms worsen you'll need steroid med to heal the ulceration. Definitely pursue better medical care! / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)

Ask your GP if she can refer you to another consultant?

This member has said all of the drs are saying she must wait 6 weeks from the hemorrhoid surgery before anything can be done. I suspect this will apply to any rectal meds that everyone keeps telling her to request. Like Quincy said, she has 2 issues going on, flaring & healing from anal surgery.

Is it sometimes happening while you are sleeping?

ks1905 said...
Is it sometimes happening while you are sleeping?

No thankfully nothing is happening while I am sleeping. When I get up in the night to go for a wee I do sometimes get blood or mucus come out but it’s not stopping me from sleeping etc

Hi old hat,

So in pregnancy I had these symptoms (not as severe) pretty much the whole way threw. I pushed at about 7 months to have a sigmoidoscopy which is when they found procitis. They wouldn’t look into it any further until once I’d had the baby but they did prescribe me the foam to try and help with the inflammation.

I had to wait a while post birth to be seen by which point all of my symptoms had disappeared and the hemmoroids weren’t even causing me problems. Due to this I didn’t really question or push for them to look further as I stupidly put it all down to pregnancy and hormones.

I was booked in for hemmoroid surgery back in Feb which was cancelled due to my husband having covid. Coincidentally the exact weekend it was cancelled was when my symptoms as well as the hemmoroids returned. As they flared it was assumed these were the cause.

Even when I went in for my surgery last month, I explained to the surgeon my symptoms and he tried to say it was ibs. I then explained the whole background to him and he looked up my notes and said he will have a look around.

After surgery he said there was procitis and they will need to investigate further. I have been given no treatment for the procitis though which I dont really understand as they did last time.

But I would definitely say my symptoms have got a lot worse post surgery so I’m guessing this has caused a bigger flare

So had an appointment with the hospital today. They have put me on the list for the colonoscopy so should get an appointment for the next 4-6weeks. I asked for something for the inflammation in the meantime and they have prescribed me mesalamine (forgot ask what form I will be having it in but picking them up Friday). In you’re experience how long did it take to notice an effect (appreciate it may be different for rectal and oral meds)

Let us know what you're prescribed. It's a relief they finally made that effort.

q

Better than nothing...how long is the rx for and do you have refills?

Use one at night and then in the morning after the majority of your bms.

q

I've had good luck with the supps. They do let out purple and black color and cause you to clean the toilet more often because they are waxy, but they may help you a ton. They helped me a lot for a long time. Fingers crossed for you.

Sadly, with this illness, I have asked, 'is this normal?' way too much. The reality is, that there is a large range of awful but normal stuff associated with ibd. What you described was pretty typical for my flare ups. Just lots of messiness and unpredictability.