Hey guys,

Just a quick summary of my current situation. I have been in long term remission now for nearly 3 years due to the game changing Infliximab (Biologics) in which i get an infusion every 2.5 months. It has completely changed my life and stopped the horrendous flare ups i was originally having every 3 months, which meant i was constantly dependent on Pred.

I have been hospitalised twice. 1 was for an incredibly bad flare up when i was 1st diagnosed and it put me in hospital for 2 weeks at 25 years of age ( grim). The 2nd time hospitalised was due to a horrendous C diff infection which again put me in hospital for 2 weeks, so i have had my fair share of struggles,

I’m now 37, so have lived with this thing for years, but the infliximab has put me in long term remission finally and it’s been an absolute game changer for me.

Got married in Italy 2 years ago and my son was born last year and all this happened flare free. Has anyone reached long term remission through Biologics or any other method? Anyone that is struggling, please be positive that there’s light at the end of the tunnel.

Nearly 20 yrs in remission on the oral 5-ASA Colazal, which I initially got via NIH Phase II clinical trial. (With 1 minor flare at year 6.) Nothing compounded before that could treat my descending colon, except for steroids. So, definitely a blessed relief in my case. *** Congratulations on your flare-free pregnancy and childbirth!!!!! / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)

Congrats on finding what works for you! May it work for many years to come. I've only been in remission on Remicade for about a year and my fingers are crossed that this will continue.

Question: you said you are getting infusions every 2.5 months -- is that every 10 weeks? How did the doc arrive at that dosing? Usually patients start @5 mg every 8 weeks and it can be moved to a max of 10 mg every 4 weeks. SO happy it's working for you. Just curious about how the timing came about.

CCinPA said...
Congrats on finding what works for you! May it work for many years to come. I've only been in remission on Remicade for about a year and my fingers are crossed that this will continue.

Question: you said you are getting infusions every 2.5 months -- is that every 10 weeks? How did the doc arrive at that dosing? Usually patients start @5 mg every 8 weeks and it can be moved to a max of 10 mg every 4 weeks. SO happy it's working for you. Just curious about how the timing came about.

Not to sure, but this has been my infusion since the beginning. Every 10 weeks i head to the hospital, get my bloods and infusion then come home. Worked wonders for me. I’m only on Mesalazine (Asacol) 3 x 800MG tablets a day now. The only tablets i take.