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Photosensitivity with Humira

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Ulcerative Colitis
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Posted 1/26/2023 4:54 PM (GMT -5)
Hi everyone, its been a while. I have been doing great on Humira since 2017 but I've started to have an adverse reaction to it which doesn't surprise me having MCS. Today I have been to see my dermatologist and she has diagnosed me with Photosensitivity. My face, neck and chest look like I have been burnt, it is very red and itchy and really quite severe, and whilst I can do things to help with that by covering up and not swimming when the suns out she is suggesting that I should speak with my gastro for a change. So, my question is what is now on the market that is a good alternative to Humira? I am also thinking about maybe just taking it once a month rather than twice as I am in a strong remission and feel like I would be okay with that.
Posted 1/26/2023 11:03 PM (GMT -5)
Have you had blood tests done to check for antibodies to Humira?

Also, have you had blood tests done to check for ANAs (anti nuclear antibodies) and anti histone antibodies? Sometimes people on anti-TNFs develop drug-induced lupus, with sun sensitivity and rash being common symptoms of that.

You should have those done.

If they're negative, and you have been in deep remission for a while (year or more), you could certainly talk to your gastro about reducing the frequency of the Humira.

If they're positive, then you should talk to your gastro about stopping Humira altogether, and starting something else instead. There are lots of options for UC now.
Posted 1/28/2023 8:30 AM (GMT -5)
Yes have had the bloodwork done for antibodies and all its good. Not had the ANA test done but its something to explore. I will look at this and then as you say if they are negative I will discuss the possibility with my gastro about reducing the frequency of Humira. Thanks for taking the time to answer.
Posted 1/30/2023 1:35 PM (GMT -5)
I have major photosensitivity when I am flaring, but I have always had terribly fussy skin. I get PMLE if my UC is out of control. Now I have to watch my sun exposure since I take aza, due to the increased risk of skin cancer. Hope you find something that helps you.
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