I went for another sigmoidoscopy a few weeks ago and they confirmed the inflammation is just in my rectum.

Previously taking Budenofalk foam enema - I found this was effective with helping my symptoms pretty quickly - although I had found they had become less effective in terms of getting rid of the bleeding.

The doctor suggested I move onto suppositries as the inflammation is low down I would have a better chance of suppositries reaching the area.
I have now been on Pentasa suppositries for 2 weeks.

I have noticed a few differences but am wondering if anyone has been on these and how long I should expect to notice a big difference?

What I have found is

- less blood
- less urgency/trips to the toilet

What i don’t like is I leak stool multiple times a day. I also leak out the remaining suppository which I find hard to get used to. With the foam the leaking stopped straight away and there would never be a residue that leaked out.


They had also prescribed me octasa oral meds to take alongside the suppositries which I haven’t started yet.

He made 2 suggestions:

- taking oral along with the suppositories
- alternating every other night between the foam and suppository

Has anyone had any experience with the above, I’m thinking of starting the oral I just worry about side effects. Do you think it would be beneficial to alternate between suppository and foam?

Old hat - yes the hemmies have now gone.

He said I could use the foam but for very low down inflammation suppositries would reach it more as the foam goes slightly further up. A few doctors have now recommended suppositries over foam - I just seem to get on with foam better.
He also said a nighttime dose should be fine and not to worry about a morning dose.

The suppositries have helped in some ways - more solid movements and less bleeding but the leaking I find a problem.

Then if you have to keep using the supps, wear TENA or other reliable disposable protection to keep the ooze off your clothing. You have my complete empathy on this! I detest supps. But if they're really healing you inside, you can hopefully get off them within a couple months. THEN your consultant should figure out what med you'll need to stay with to maintain remission. Be sure to press him or her about that-- because your proctitis has returned 2-3 times since your last childbirth, right? So you'll need to keep it in remission with something when you next achieve it. Good luck and let us know how you're doing. / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)

UCers who have inflammation above the rectum usually have to take oral med to stay in remission; that's my situation because I've had flares involving my descending colon and sigmoid, too= left-sided UC. If your consultant is recommending use of Octasa, and it's an oral anti-inflammatory, then he may be thinking you'll need to take that to achieve and maintain remission. (Because proctitis can move upward to involve more of the colon. Liquid retention enemas can reach the sigmoid, so a stretch of mucosa above the rectum, but inflammation higher up requires oral med.) That's why Quincy posted above about the need to take oral med. You could start a new thread here with subject "UC Proctitis-- what med to take to stay in remission?", and then you may get more responses from forum members with mainly rectal inflammation to-date. *** At this point try not to worry about possible side effects from oral med; more options are available now that most of us can take with no or minimal side effects. Generally, it's safer to take maintenance med than to risk future flares that could involve more of the colon or all of it (=pan-colitis). / Old Hat

I have tried mesalamine enemas in the past and had trouble retaining them so he said suppositries were the best option.

Thanks for the tip old hat - I will try a new thread for proctitis and see if I get abit more feedback regarding maintenance for proctitis