Got a B on my colonoscopy. Doc says he’d like to see an A

Rusty,

On my methotrexate.... (I know it's not the same, however there are symptoms very similar for me as what you are experiencing.) .... I started out taking it at night, but the next morning the side effects were readily apparent... So I started backing it up... 1st time was 4 hours, then another 4 hours... So that I was taking it at 4 in the afternoon noon... Then I had to move it back another 2 hours.

Now this time around, (I was only taking it the week before and then after my infusion to cut back on possible antibodies before, but my Psoriasis started acting up so had to increase dosage.. thus changing the time.) I started it in the morning and went forward weekly by 2 hours. I ended up at 4 to 5 pm.

It's sorta fluid. It takes awhile to know what to expect from your body... And then you have to make educated guesses based on previous experiences.

It takes awhile for your body to adjust to an increased dosage plus your side effects may change. Changing the dosage is frustrating because your dealing with what was before plus what's going on now. Be cognizant of symptoms and timing ( notes in your phone) and adjust from there.

Did you increase your fiber amount or try gas?

Hang in there!
Clo

When you speak to him you might want to ask for a prescription of Zofran for those times where nausea impacts you. The melt under your tongue kind.

Also, when I was first taking methotrexate we had me doing 6 pills then 4 pills.... Staggering the dose. It worked like that for a long time and it did help some. Knowing that I had one week on and one week on helped me with scheduling and planning. Just a thought.

Hang in there
Clo

Thankfully. Back on the 100mg before bed of the 6MP and the bloated feeling during the day has stopped.
I guess I’m finally used to it.

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I was on 6MP and went for blood work every two months

Rusty,

So very glad that the side effects symptom of bloating has improved.

There are some ladies in my support group that have been on 6mp and Remicade for 10 years. They have a few hiccups but usually do well. They do their blood work every 6 or 8 weeks depending on their infusion schedule. But personally I don't know a lot about it--except that it's supposed to be better than methotrexate for males to take. They have had to watch their ALT and AST levels...increase their water and fiber intake to help with that.... And they drink cold brewed green tea daily...like 2 or 3 cups....and they really watch their sugar and carb intake because their glucose goes up easily.

Since my AST and ALT have been a little high I'm going to try their recommendations..... A dark green salad a day, 3 cups of green tea, and at least 90 ounces of water/tea/milk a day. I'll let you know how it goes.

Clo

Green tea supposedly helps lower AST and ALT. It is an antioxidant. Too much can have a negative impact on your liver though... So it's a fine line. I've got labs in a week and I have started drinking 20 ounces of green tea a day. I'll let you know if it helps.

Rusty Barr said...

Michelejc said...
I was on 6MP and went for blood work every two months

Thanks

Just curious. Are you still on it? Did it help you? What happened?

Or anyone else here…taking or have taken 6MP in the past…would love to hear your comments on how it went.

Thanks.

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I take the 100mg of 6mp before bed. And I wake up most days now with a slight headache type feeling. Kind of like the feeling, when you take supplements on an empty stomach. It’s not awful, but it’s there in the mornings, then goes away. Usually by afternoons.

Thankfully the bloated feeling I was getting is gone as is the nausea feeling.

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I only took it years ago to help me get out of the flare I was having. It worked like a charm.

Rusty,
When I first stop taking steroids my body sorta goes pssssst.... Sorta like it's saying something is different here... And then my body sorta struggles for about 8 to 12 weeks. It either settles in with a new norm at that point or it doesn't and at that point we start reevaluating. Sometimes I have to adjust my diet to help it along.... No sugar .. milk products...(Except extra SCD yogurt)... Are you watching your diet? Are there any little trigger foods that you are sneaking in there? ( Hey I do that so I gotta ask..sometimes it's that little cheat that is just enough to mess you up)

I try to be patient unless it's really affecting me... But some of the people I know...well they are not patient and sorta jump in different directions. It works for them...for me...it's gotta be slow and easy.

Hang in there!
Clo