I’m back again!

I been gone for a while now and haven’t posted but do check in on occasion to see how everyone is doing.

I’m FLARING!

Well that’s my DX as to what’s going on.
I’ll try to explain without getting long winded.

DX’ed with Pancolitis 2005. Managed to get it under control and have been pretty good since. Some very minor speed bumps throughout the years but nothing like I’m experiencing now. Started about 4/5 weeks ago. Constipation! However, I’ve always leaned towards that so when it first started I didn’t think too much of it. Throughout the years all my scopes have been perfect. Biopsies also showed all was well. Last scope was 10 months ago. All was good.
Meds I have been on for YEARS is Colazal.
Only 3 tablets a day.

But….about the time my symptoms changed I was also sent the meds from a different manufacturer. Wasn’t happy the minute I opened the bottle but after calling the pharmacy and asking about that I got nowhere so I had to take what my Insurance paid for.

OK…Symptoms are just constipation. No blood, mucus, pain, urgency. Nothing but constipation. Small, formed BM’s maybe twice a day. IMO it’s inflammation. Which to me means a flare at some stage. Doesn’t seem to be getting worse but surely not improving.

My Dr is on vacation until Monday and I’ll call then. What I did decide to do was increase my meds to 6 a day. Started this about a week ago. May be to early to tell if that will help.

Thoughts?

Post Edited (Pooper Bowl Champ) : 9/6/2024 2:41:38 PM (GMT-4)

I agree re your symptoms...good call.

When you talk with your GI, request retention enemas (not just suppositories) to treat the inflammation. In the meantime...you could increase to top dosage of Colazal considering your original diagnosis was pancolitis, but see what your doc says.
I also suggest not going down so low for maintenance dosage of the Colazal, and after tapering the rectal med, remain on a maintenance dosage. Not that you don't flare when on maintenance...just that help you keep inflammation to a minimum.

Keep us updated on Monday.

q

Called the Dr today.
Spoke to the “Nurse”. She’s going to relay my message to the doctor and get back to me.

ETA: The Colazal I now have are Mfg by Zydus. I don’t recall who mfg’Ed the prior ones but these are a different looking capsule.

Hello All,

I’m back to this forum after so many years. I noticed a small amount of blood in the stool this evening. Right now I’m taking Colozal 3 two times a day. Praying this is a small flare. I wanted to increase my dosage back to 3/3 times a day for couple of days. Will this help with this flare or shall I ask my Gastro to give a prescription for suppository? Can you please advise on how many days it will take to control the blood after increasing the dosage ?

Update:

I called my doctor and the earliest he can see me is 9/19.

Symptoms still the same. No better no worse. Starting to get concerned. IMO this doesn’t fit the agenda of UC. Or does it?

I’m sure we’ve all gone through periods of letting our minds go to the worst possible places when things just aren’t right.
Have no choice but to wait until I speak with him. I’m pretty sure a Colonoscopy is coming.

prepare questions beforehand and be demanding, and keep asking questions to not let these doctors walk out so quickly from appts. they need to spend at least 10 minutes with you. don't feel bad, they 're expects at rushing us out, we just gotta fight back. we pay insurance, they get paid from our insurance, and rush us out in return don't make sense

Update 3:

Had my Colonoscopy this morning.
Dr. Said all looked good. No sign of inflammation. Nothing abnormal was noticed.
However he took a total of 32 biopsies.

32?? Never before have I had that many taken.
Now I await the lab results. 🤞

Just got the call from my Dr.
All Biopsies came back Benign. No dysplasia.
No trace of UC.

Told me he wants to repeat the Colonoscopy in 1 year.
Great news. Guess I have to change my diet because I’m still dealing with the constipation.

Post Edited (Pooper Bowl Champ) : 10/22/2024 1:45:31 PM (GMT-4)