Posted 12/22/2024 1:42 PM (GMT -5)
Old Hat, I’m sure stress plays some role this time of year for me. It’s just such a tiring game to play, as I’m sure everyone here gets, like whack a mole trying to figure out if symptoms mean illness, a fluke, a trigger food, something you added, something you stopped, a flare…is there ever normal for us? What should we really expect from our treatment? It’s hard to know when normal becomes just not having to run to the bathroom 10+ times a day or being afraid to go anywhere. Since I haven’t had to live that way for a long time, I thought I was doing pretty good!
Straydog, thanks for that. It’s another frustration with this disease because there are no universals for treatment whether pharmaceutical or not. Sometimes I think I do best doing nothing but the Entyvio. I’ve only stayed on Lialda, even if inconsistently, because my former doctor wanted me to for cancer prevention. I’m not even sure it benefits me anymore and suspect it might actually do more harm than good. So then I read posts here that yes, you can become intolerant. It’s a mind game as much as a physical one because you scrutinize and question every little thing.