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Steph 21 yrs - Surgery Soon

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Ulcerative Colitis
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Posted 8/11/2008 2:30 PM (GMT -5)
Hello,

For those of you maybe pushing around that surgery idea, we wanted to share with you that we have a new blogger on the ucstory blog - Stephanie is 21 yrs old, and she is headed into surgery on Aug 22.  She is documenting her journey as it unfolds with text and photos. 

http://ucstory.wordpress.com/surgery-photos-stephanie-l/

Do check in, she is going to need support from our uc community, but also she is so incredibly focused on getting healthy - I think she is a great inspiration.

*also, for new UC people do note that the MAJORITY (60-80%) of UC diagnosis DO NOT require surgery*

Take care,

Megan

Posted 8/11/2008 2:40 PM (GMT -5)
Awesome, thanks for sharing!! One day when I get surgery I'll be sure to contact you so I can share my experience too :) It's such a great idea!

Can't wait to get home so I can check it out
Posted 8/11/2008 3:15 PM (GMT -5)
Hey Edie,

How are you feeling these days, you make is sound in the post above that you are really seriously considering surgery?! So no remission yet?
Megan
Posted 8/11/2008 3:25 PM (GMT -5)
Nope not in a long time... I've actually gotten worse since I had my scope, I'm just wondering if the prep irritated things more. I go in next Monday to find out the biopsy results and see how it's really looking. He wanted to try out Lialda (since it's the only 5ASA I haven't tried) before resorting to Remicade but he said since I have had to take prednisone several times a year every year since I've been diagnosed that I would most likely have to be put on Remicade at some point. He did also mention surgery as being an option so, I'm thinking of asking him for a surgical consult referral, just to actually talk to a surgeon, not to schedule anything yet.

I would really like to do it while I'm young and relatively healthy, and I'm really just tired of dealing with it and letting it ruin everything! The idea of waking up after surgery and feeling disease free is the best thing I've ever heard and I'm getting to the point where I'm ready for it.
Posted 8/11/2008 5:32 PM (GMT -5)
Thanks for this Post! Here is another one I found on the link for someone who has already done the surgery.
http://ucstory.wordpress.com/surgery-3-jpouch-or-takedown-surgery/#comment-285
Posted 8/11/2008 9:09 PM (GMT -5)
Hehe, Socalsd that other person is the one who posted this topic wink
Mark & Megan have a great thing there, it's so helpful for anyone thinking about surgery
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