Murphy's Law

I think I need to learn to keep my mouth shut when I am finally feeling good!  I have been doing so well over the last 5-6 weeks.  No blood, no mucus, hardly any cramping or pain and very few trips to the potty.  When I say very few, I mean 3-6 a day (down from 30-40 a day).  Isn't it kind of strange to think 3-6 is minimal!  Perhaps the word should be tolerable.  I was put on Imuran in the begining of September so they could start trying to taper me down off the Prednisone.  I have been on 30mg since 5/5/08.  We have tried twice to taper down, but each time I hit 20mg I would start steaking blood in my movements and would feel really gassy and achy in my pelvic area.  I was only on the Imuran for 3 weeks, as I ended up having an allergic reaction to it and was spiking fevers of over 102 degrees, muscle and joint pain and horrible headaches.  They did start to taper me down on the Prednisone 2 weeks ago on Tuesday.  I am down to 27.5mg.  I was supposed to call back tomorrow with my progress so I could go down to 25mg.  Then.....I opened my mouth.  I felt really good yesterday.  Better than I have in months.  I felt like I actually had a little energy on top of not having any UC symptoms.  I was looking foward to being able to go down to 25mg tomorrow and was optimistic for the first time in over 5 months that things were finally turning around.  Then last night before bed, I had a BM...guess what decided to show up along with it.  Yup, blood.  You've got to be kidding me!!!!!!  I thought to myself, don't get all worked up yet....maybe it's just a one time thing.  So, this morning my first BM looked just fine.  Sigh of relief! :)   Unfortuanately my second and third today have not been so fine.  I am so frustrated right now I could spit.  I am so sick of being sick.  I am tired of filling my body with medications, that are supposed to be correcting the situation, but don't seem to be doing a darn thing.  I am tired of taking supplements because my stinking body doesn't know how to aborb minerals because of the Prednisone.  I am sick of my hair falling out.  I am sick of the "moon face".  I am sick of the acne.  I am sick of the dark circles under my eyes.  I am sick of calling in sick to work.  I am sick of I am sick of not having enough energy at the end of the day to go outside and play with my boys.  I think I need to stop...you get the point.  Thanks, I just needed to vent.

Danni

Hi Danni,

I know almost how you feel, I was not that bad of shape before but still pretty bad. For me this taper, I am down to 5mg one day 2.5 the next. I tend to get some blood a few days to a week after the taper in a few bm's here and there but then it goes away. I kind of tapered by 2.5mg every two weeks, since I would bleed a bit almost a week after the taper then I would stay at that another week to see what would happen then would taper again.

I know what you mean, when I see blood in toilet I want to scream my head off and rip the toilet out of the floor and throw it 100 feet up in the air and well, I feel kind of nutty!!!!!

I hope it's just a small blip and you continue to do well. Take Care!!!

Hey anyone know the song from Monty Phython? Allways look on the bright side of life.

Yep life sucks I hope things get better for ya.