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Frustrated-Finally off prednisone

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Ulcerative Colitis
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Posted 5/7/2009 4:18 PM (GMT -5)
Hi-

I never really post here but do enjoy reading everyone elses posts. I finally tapered down prednisone after being on it since January. I was feeling great while on the prednisone and thought there was no way I could feel bad again. Well I stopped taking it on Monday and today is Thursday and I have gone to the bathroom numerous times and been lying down all day and sticking my kids in front of the tv. I am so pissed! I also take VSL 3, Lialda ( 2 a day), Lexapro 10 mgs. I just needed to vent. I read the boards and think to myself I am glad that I am not as sick as so and so.... This was my first time taking prednisone and I love it and hate it.

Posted 5/7/2009 4:41 PM (GMT -5)
Since you have just tapered off it, do you think it might be worth speaking with your doctor about getting back on at a low dose and then taper off it at a slower rate?

Or you could even try to take cortenema (or other rectal meds) to see if that helps.

It's better to tackle things now so as to get the UC back under control soon.

Hope you're fine soon.
Posted 5/7/2009 4:51 PM (GMT -5)
Argh I completely know your frustration! I finished taking my Pred (5mg) on the 2nd day of my holiday 2 weeks ago and by the 5/6th day I was rushing to the toilet several times and just generally feeling gross. I went back on 15mg to keep me going until I see the consultant on Monday which has helped. I don't have any tips for you but just wanted to say I know what you mean!
Posted 5/7/2009 6:42 PM (GMT -5)
I can understand ,  two months ago I tried to taper off prednisone and as soon as I would get below 15 mg I was hit with bowel issues and severe arthitis issues. 

I am now taking 2 Caltrate (calcium and Magnesium ) a day for bone denisty,  it seem to have help my bowel symptoms somewhat .  I began tappering again a week ago and it seem much better,  but I am only going down by 2.5 mg/week .

Best of luck

 

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