Posted 9/7/2009 6:57 PM (GMT -5)
Hi, I am new to this site but not new to UC or CD. I'm not quite sure what I have. I have inflammation on my left side to my rectum. Not the typical diarrhea. I am constipated...need dynamite. With lots of blood, mucous, and water. I have suffered with joint and eye inflammation too.
I was first diagnosed with UC in 85. I switched 5 yrs ago to a new Dr who diagnosed me with crohns. I've been on imuran, rowasa and canasa enemas, dipentum, colazal, prednisone, remicade, humeria, and now I'm back on remicade, azulfadine, and cortifoam. I am supposed to be on methoxitrate but waiting for insurance approval. (I have been waiting for 2 months, and I've called to remind them). no reply. I refuse to be on prednisone again. I had a reaction to remicade-one time. The time after they pre-med me and I got along fine. The Dr insisted for me to go off of it and onto humeria. It didn't work and I am now sick as ever. I have one infusion of remicade 4 wks ago. still waiting for it to kick in. It took a couple if times the first time.
My Dr now tells me my options are limited. She has never brought up probiotics, omega 6, anything for constipation. Anything but folic acid, and I read on the readout that came with my azulfadine refill. Not to be taken folic acid. I am so frustrated with my DR. Who is suppose to be one of the best in this field. ?? Also, She prescribed the cortifoam once a day. Directions say to use twice a day for two wks, then to cut back to once. I called and asked if I could do it twice and they firmly told me NO, once a day. I thought it was trying to help and didn't know what the big deal was.
I would love to go to the Cleveland Clinic but don't know who to see. Does anyone have suggestions? Thanks for listening. I know my family is tired of me being sick and tired.