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Starting Humria

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Ulcerative Colitis
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Posted 2/10/2010 7:37 PM (GMT -5)
Hi all
I am starting Humria next week and I am just looking for some who has been on this and had success or no on it.
I have been on remicade, which they thought was giving me joint pains so they took me off it and put me on imuran to see if the pain went away, but it didn't. The imuran didn't work, so now we are heading to humria, and if that doesn't work, then we have to pray i have not created antibodies against the remicade, so I can go back on that.

So ladies and gents any info on the good and bad about humria would be great

Thanks

S
Posted 2/10/2010 7:57 PM (GMT -5)
I wish you luck. This disease sure is rotten, isn't it? After my 3rd infusion of Remicade (two days after), I had diarrhea, nausea, chills, body aches and a temp of 101. That only lasted 24 hours though, but initiated a flare. I felt so great after my first two infusions too...what a bummer! Now the doctor doesn't know whether I suffered from a virus or my body reacted to the Remicade. Guess we won't know that until after my next infusion on the 26th of Feb. Had to go back on the prednisone too. Now down to 5 mgm of prednisone every other day but I know I need more. Just hope and pray I can hold out to the 26th. If I suffer another reaction to the Remicade, it is on to Humira for me too
Posted 2/12/2010 1:59 PM (GMT -5)

Just got approval today for Humira.  I have been trying since November.  I really hope it works.   Remicade didn't help at all.  How much do you guys pay after insurance? I am worried about the price since I have  a deductible of $4500.

Posted 2/12/2010 2:19 PM (GMT -5)
Oh wow Boxermom, that is a lot of money to put out of pocket. I have a co-pay of $5. Since my Remicade infusions are performed at one of my GI doctor's offices which is adjacent to the surgery center where he also is part owner, it just comes under the visit. I believe they charge either $4,000 or $5,000. I have no idea how much the insurance reimburses them. The hospital charges twice that for an infusion. I am still flaring...such a bummer
Posted 2/12/2010 3:23 PM (GMT -5)
I just posted this on another thread...
I just got off Humira, I was on it for almost two years.
I am in Canada and its still not approved for UC. I have heard that it only works in about 50% of UC patients, it works better Crohns apparently.
I started on bi weekly injections and was on prednisone at the same time. As soon as I got off the prednisone though I had to go on weekly injections..and later on ended up adding the prednisone back into the mix. I never got below 3-4 Bms a day and they were still urgent. With prednisone I was downt to 1-2 and feeling pretty normal..no urgency or anything but that was definitely the steroids working. Finally I decided to come off humira for a couple reasons. I did not feel the risks and side effects were worth how it worked for me and i was getting one illness after the other this winter...just sick all the time.
Another thing, I have a very swollen lymph node on my neck that has been seen by three doctors and will not be removed to test for lymphoma. There is a slight risk of lymphoma with Humira on top of the risk that already exists with having colitis in the first place.
I do not want to discourage you or antying..just letting you know my experience with humira..it was not horrible by any means but for me I am not sure how well it worked.
I have been off for just over a month now and feel so so..1-3 bms a day but still that annoying urgency in the morning which I will be taking care with something rectal soon.

Good Luck! and if you have any questions, ask away!
Posted 2/12/2010 4:56 PM (GMT -5)
Thanks for the replies.
KrissyUC, I hope it works for me on it's own as prednisone dose nothing for me but make me eat more. I was on it for months last year and I gained about 30 pounds in a matter of weeks, which I still can't loose.
So here's to next week and say a little prayer to what ever god you believe in that it works for me.
Thanks again

S
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