Remicade sideeffects

Nope. To be honest, I've had no side effects what so ever (except getting sleepy afterwards, but I think that was from sitting in a cold room for 4 hours).
I would call the doctor just to be sure, but I wouldn't worry about it much unless it happens everyday.

Glove, when did you start seeing improvement with the remicade? I've only had one infusion so far and I've seen some improvement, but I'm not in remission.

NewShinyCD-

I noticed some improvement almost right after my first infusion but I did not start feeling completely better until the third infusion. After my first one the blood and mucous stopped and frequency went down to about 5 times a day. Now I am only going 1-2 times in the morning and no blood, mucous and no cramping at all. My energy levels are back to normal and I am able to eat almost anything I want.

I hope you notice alot of improvement soon. My Dr. told me it can take up to four infusions to see a difference.

Good Luck!

LMFD296-I agree with the others. I would mention it, but unless it is happening all the time, i wouldn't be alarmed. And I also have a lot of aches, pains and such in my muscles and legs/joints because of prednisone-so I think it could also be from that. When i taper off of pred, I can barely move the joint pain is so bad. When I am on it full dose, my leg muscles are very weak-it is weird.

Anyway, newshinycd, I wanted to tell you that I have had 2 infusions and am still not quite in remission yet, but much improved. After the first infusion, I noticed I was going less often, but was still having blood and things weren't completely formed yet-and I was still having the major cramping and pain and such. After the second infusion, things have come a lot farther-I am now having 1-3 formed stools/day pretty predictably, and prior to starting on this stinking antibiotic for my sinuses (a z-pak), I wasn't seeing any visible blood. Now I am getting some streaks, but I am trying not to panic about it. My doc also said it can take 3-4 infusions to really get into a full remission. And that seems to be the case for me. I have my next infusion on 4/7 and I am hoping it will really get me where I want to be. But I definitely saw a bigger change after the second infusion.

I haven't seen any side effects from the Remi yet, but I have only had 2 infusions and am still on the full dose of pred, so I am not sure what would be from the remi at this point anyway.