I Cured myself and want to help!!!

:) Well served Dr. A. 60mg of prednisone had me pissing the bed regularly at 3-4am. Plenty of Enemas along the way too. That was a great time with my fiance! That aside, I did misunderstand some of your earlier postings but now I have a much more clear understanding of where you are coming from. I apologies for coming across as naive or ignorant. I just know that there is not a lot of good information floating around when it comes to diet and parasites and frankly, I am the anomaly here since I seem to be the only one on this forum stating that I have been to the depths of hell with this disease and made it out on top. Its lonely up here and I want others to join me. Not being able to leave the house, go out with friends, or a vacation is a terrible feeling. No one should have to go through that because they fear going in their pants just like I had so many unpleasant times before.

How has this diet healed the lining of your colon, thus curing you? Everything that everyone on this forum has swallowed or injected into them is simply treating the symptoms, nothing less. Diet may or not help either with some people. Our colons are not made the same way. We have different flora, different health histories and different genes.
I have heard of this before. Will probably read another post like this again. And try to ignore it. But to have someone say they've cured themselves will only give hope to the desperate or the naive.
A few years back, breast cancer patients heard of a supplement that decreased cancer dramatically in some clinical trials. It was tested further then put on store shelves. Disappeared quicker than store owners could restock it. Then women started developing a more progressive breast cancer. Some even died. Everyone, including naturopathics and doctors, thought it could prevent or even cure the cancer from coming back. Unless we know the true cause(s) then we cant successfully treat and cure the disease.

I have asthma. No diet will cure my autoimmune disease. My father and mother both had severe asthma when they were children. I had moderate during childhood. I may have grown out of asthma or not. I don't need my puffers, but when the temperatures and humidity rise, I have to stay in. With UC, you can't grow out of this. All you can do is prevent the symptoms from returning, heal your body and hope for no side effects.

I agree with Bacon, don't be depressed when your cure disappears.

You are not the only one to have gone to hell with UC and made it back. Many of us have had long term remissions, by whatever treatments we believed in, western or eastern, only to flare again. You will flare; UC is a life long disease marked by flares and remissions. I have met several UCers who had 25 year remissions and then flared again. No rhyme or reason. I had a 10 year remission followed by a severe flare that resulted in surgery (the only cure in my opinion). You're young and optimistic and passionate about what you believe in but do try to understand that many of us have walked your path, tried your approach, and did not see results.

Sue

Ditto to Suebear's remarks. Again, well said.

I'mCured said...
... and frankly, I am the anomaly here since I seem to be the only one on this forum stating that I have been to the depths of hell with this disease and made it out on top.

I think you need to take some time to read through historical posts. I have been to the depths of hell with this disease and made it out on top. The main reason I stay on this forum is to let newbies know about alternative treatments, especially in regard to fecal transplantation. I don't offer any guarantees though. I can't. It doesn't work for everyone. Anyway, my second flare was very serious. I waited for months to see a GI because I had to wait one month to be with the company for one year to be eligible for insurance, about one more month for the company to send in my application, then about one more month for the insurance to take effect, then about one more month to find a GI and get in to see him. So what I thought was going to be one month turned into about three plus months.

By the time I was able to see a GI, I had been bedridden for two weeks, was peeing out blood out my butt, and was going every 10 to 15 minutes. My GI knew my colon was inflamed when he did an external exam. He was in panic. Said my colon felt like dog meat and was too inflamed for him to do a scope. He gave me meds (not pred though, he couldn't without a diagnosis), and scheduled a sigmoidoscopy for three days later (when the inflammation should have subsided enough to get in far enough to make a diagnosis).

After the mini scope, he diagnosed me as having UC and gave me pred. I took the pred, which worked until I started the tapering process. I was pred dependent. After finding out the side effects of pred and realizing that there are no medicines that cure the reason for the disease, I looked into alternative treatments. Having abused antibiotics, I thought fecal transplantation might help; so I tried it. After only three treatments in which I was able to get only a small amount of poo from my granddaughter's diapers, I was "cured."

Unfortunately, I kept getting a bladder infection, most likely a side effect of the pred. I kept having to take antibiotics and started flaring again as a result. I did fecal transplantation, again using my granddaughter's feces, and have been in remission ever since.

Post Edited (subdued) : 5/20/2011 9:24:30 AM (GMT-6)

I haven't really chimed in here at all, not sure what I could add that hasn't already been said. That's great that you are feeling well- do you find your limited diet to be at all restrictive, like does it cut out dining out? Special occasion meals, like a wedding or birthday? Please explain your statement that I quoted- does this mean you only purchase meat from farms that you can buy direct from? Do you grow your own fruits & veggies? Bake your own breads? I'm just curious as to how one goes about living a full life with such a restricted diet. What exactly do you mean by saying "understand its origin"- I can understand the origin of Doritos, for example- I can also know the origin of a salad, basically. Do you mean knowing the origin of a food, from farm to table, or ??? Please clarify!

I'm cured said...
My diet now consists of only food that I can understand its origin. Mostly organic, lots of raw fruits and vegetables, lean means, nuts, seeds, and hearty grainy bread occasionally.

This is just my two cents worth. I tried EVERYTHING from diet to drugs. Holistic to accupuncture...just name it..I tried it. What works for one will not work for another. Surgery (in my opinion) is the only cure for UC. I can say now I am finally cured. :)

I get what you're saying, but notsosicklygirl is right- most salmon is farm raised, fed on GMO grown grains. As is basically ALL the meat you buy from a supermarket- even organic beef, hormone free, etc. It's all feed-lot meat, stuffed to the gills with GMO grains, & the actual meat is filled with massive amounts of cortisol & stress hormones, from inhumane slaughtering practices. I am very aware that just because something is labeled as "food", it isn't necessarily so. Hence my questions to you- do you truly believe that the food you buy from the supermarket is the freshest, most untainted you can get? Amy's foods are good- I buy them a lot myself. But they're still pretty heavily processed, healthy "junk" food. Soups probably less processed than others, I'll grant you that. Sigh... I just get tired of the people who don't give you straight answers- it's nice to think your body is a temple, but HOW do you do that in todays reality? Are you growing your food, baking & making most of it yourself? Are you buying all your meats from local humane farms? If not- then you are kidding yourself by thinking you're feeding the temple. And when you do get invited to a wedding (or something like that) you just don't eat? At all? What about oatmeal, rice, etc? Your ideal dinner of a salmon fillet, baked potato & broccoli are fine- but where was that broccoli grown? Is it GMO? What about the potato? Do you buy strictly wild salmon? I'm not trying to be pushy, but I really, really AM curious as to how people do the things they claim to. Like I stated before, we grow most of our veggies, we buy our meat from local farms, I buy organic over non-organic in most cases, I make 95% of our condiments (ketchup, BBQ sauce, mustard, pickles, salad dressings)... but some things you can't get around, like oatmeal, rice, flours, tea, even soy milk! Dairy is huge too, unless you're making your own yogurt from goat milk, or local cow milk, you're eating yummy spoonfuls of hormones, antibiotics, GMO grain-fed milk. I mean, I don't eat chips or candy too often either, but what's wrong with a nice organic, fair trade, 85% dark chocolate candy bar?

It does help clarify, thanks- so really though, all you're saying is that for YOU, managing your diet & ridding yourself of parasites cured you. Which means nothing for the next person, know what I mean? And really, as far as diet goes, you're basically just saying to do the best one can, be sensible, etc.  Back to Square one, huh??   Anyway, hope your good health continues.

I am the same way Eva. I try to eat all humanly raised animals but it's difficult to know exactly where things come from. I only buy wild caught fish and eggs that are from free range hens but it's difficult to know what is what when a lot of these brand exaggerate the ethics behind their production. I know in order to call yourself organic you have to meet certain standards and it is pretty strict but as for Amy's, I don't think their products are all that good. I try not to eat things that are packaged but sometimes you can't avoid it, I have to eat. I don't eat this way because of UC, I eat this way because I think it's the right way to live. Foods marked "Natural" really do not have to meet any standard which bothers me. It's almost meaningless to say natural, it's just a marketing term.

I am sorry if this has been asked but did you have stool tests thaat showed parasites? I know stool tests can show false negatives but just curious if you had any scienetific confirmation that you had parasites or if the confirmation is based on your own evaluation of your condition? Not to say you need a test showing parasites because I am sure there are parasites out there that don't show up on standard tests...

I'mCured said...
Arggg... you are backing me into a corner here a little bit ;) I really think that most or all people's UC could be cured the same way mind was or very similarly. Parasites are a huge factor that are totally overlooked by GIs and the diets of so many people are horrible and they don't know the first thing about correcting it. If they could clean their diets up that would correct all of those who have gotten to their current bad place because of undiagnosed diary and gluten intolerance and the like. I do not believe that genetics play much of a role other than some people's guts (mine included) are their weak point. If it was not for stress, poor diet, parasites, they would not just randomly and sporadically have severe inflammation. The underlying theme for me is that yes I had parasites, but it was diet changes along with supplements that enabled me to remove them from my body. It was also diet that was gentle on my devastated intestines and promoted healing. Ravaged intestines can heal and want to heal. They need to be given the right nutrients and conditions to do so. No drug is capable of doing this for us.

I believe that the question has been asked before, but I need clarification. Since you say that you are cured, are you eating whatever you want now? or Are you still monitoring your diet?

Why would you get sick from Taco Bell if you're "cured"?

When I was younger, preUC, I could eat anything without being cautious because I didn't have an illness or easily upset GI tract. You shouldn't have to be cautious if you're cured because you wouldn't have to worry about upsetting any conditon - you don't have a condition to be concerned about.

I still dream that I will be back to normal some day... while in remission, I am able to eat whatever I want. I would never eat Taco Bell because I don't like it but I do eat Chipolte, Chinese food, Take out, Pizza... Often times I eat vegetarian when I order out because I don't know the source of the meat and it grosses me out. You know those places buy the cheapest possible meats.