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prednisone muscle and joint pain

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Ulcerative Colitis
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Posted 5/31/2011 7:04 PM (GMT -5)
When I get down to 5mg, the pain begins, a little at first and then soon it is every muscle I never knew I had.  Last time I was off pred for 2 months and was in horrible pain, so bad I could only take one step at a time, so bad that after sitting for more than 10 minutes I would want to cry moving was so painful, walking helped but I whenever I stopped moving it would come back and hurt terribly.  I cry now just thinking about that pain.

This time I am going to try acupuncture, first treatment is Saturday.  I will also call my Doc if it get's as bad as it was.  I'll keep y'all posted. 

I have been on varying doses of pred for the past 4 years.

Posted 5/31/2011 8:34 PM (GMT -5)
Beth, how are you doing with Remicade? It sounds like you've improved a ton and you're going to be able to get off prednisone completely in a couple weeks? I just got off a long course and I had that stiffness/pain like you describe for months afterwards. I still feel a bit stiff when I get up. I have been trying to keep active despite the stiffness but it's difficult. Maybe Remicade will help with the muscle pain and stiffness. I hope so. Please keep me updated.
Posted 6/1/2011 3:08 PM (GMT -5)
Thanks for asking. So far so good on the remicade I do have some slight side effects some heartburn and some nausea and sometimes a bit of a headache but it is listed as being common side effects and they are not that bad.

That's great you are off pred, how long had you been on it for? How are you doing off the pred?

I stopped taking lipitor to see if that is causing it too, I know it's bad but I have to know and that could be a possible side effect from that, I will know soon enough.
Posted 6/1/2011 7:38 PM (GMT -5)
I have been off for about 2 months I believe. I was on for about a year!!! I was not on a high dose the whole time. I was on a quick taper from 40mg and relapsed at 2.5mg. I ended up having to go back up to 40mg. I tried to go to 15mg and taper back down but I began to flare up severely and went to 40mg and tapered slowly. The second taper probably took a good 8 months. The last 10mg were probably 5 months of that time. Crazy, isn't it? I am doing well now, I have good days and bad days. A bad day isn't unbearable, just maybe 2 or 3 movements that aren't too formed. The worst part is that one bad days makes you so stressed about getting worse. I am finally getting back to my old self. I looked in the mirror this morning and my body is not so bloated, I feel like there is hope that I will get my figure back. I was feeling really bad about myself or a while there. It was depressing. I can't believe it's been 2 months and I am still adjusting to being off this drug and trying to get back to my normal self.

I am happy you're doing so well on Remicade. Are you still taking the meds in your signature? I wish I wasn't taking so many medications. That's the one thing that bugs me. I would love to stop Asacol but I worry about become unstable. I am pretty sure it is doing nothing for my UC at this point but not 100% sure.
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