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Poop better but more blood, time for surgery?

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Ulcerative Colitis
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Posted 9/1/2011 8:44 AM (GMT -5)
so I have had really huge poops 1x a day for about a week now (instead of stringy ones) and not much blood.

Today I have a good poop and when I wiped it, it looks like I had my period out of my butt (sorry to be gross).

I am super stressed out, my friends son killed himself last week, my Mom's boyfriend is on his deathbed, yesterday they gave him 2 hours to 2 days to live.  My Mom is schizophrenic so this can send her into a tailspin and that sends me over the edge.  Found out some things I did not want to know about my Mom's boyfriend. 

Saw Kidney Doc on Tuesday expected to hear that it was a go to have kids and he tells me my liver disease could get worse and I could die if I get pregnant and that I may have FSGS (dialysis and transplant) or just a rare case of the MCD I was diagnosed with but to be "positive" see him in Nov. 

Fighting tooth and nail with my Docotor's office billing dept and my insurance for the $40k in remicade so far.

I see GI 9/26, next remi 9/27.......maybe I need a higher dose, mabe I need to have surgery.....I can't keep on doing this.......kinda have a calm feeling about saying F-off to my colon.

Oh and I turn 36 this month, my biological clock is ticking!!  And I got in a fight w/my husband last night and have reports for work that I need to be doing now and have to travel to the UK for a week in Oct and 2 days in Nov, Jan,April and June for work.

FML!

Posted 9/1/2011 9:07 AM (GMT -5)
Beth, I'm sorry you are having such a rough time. I can only tell you that I THANK GOD I had surgery. I told my colon F-off too! All my problems are gone now. Could be that way for you too. Best wishes.
Posted 9/1/2011 9:23 AM (GMT -5)
Beth - only you know when the time is right. I am sorry you're going through so much right now, that's the last thing you need when your condition is unstable. I think surgery is a good option, if I were in your shoes, I would probably consult with a few surgeons and maybe get another opinion from a GI. It sounds like treatment is going to be difficult with your liver condition on top of the UC. Having children may be harder after the j-pouch surgery, you should ask the surgeons about this. You may want to try to have children before having surgery if possible? I would do some research on the best surgeons in the area and start taking to patients. I've heard many say that the better the surgeon, the better the outcome & the better potential for pregnancy so it is definitely something to consider. If having children is a huge risk to your health, maybe it is worth considering adoption or a surrogate? I know it is expensive but it may be better than putting your body through something it physically can't handle in my opinion. I hope you figure out what you want so you can heal and get on with life. Life without UC is very appealing, no more medication, no more worries about where the toilet is and no more unpredictability!
Posted 9/1/2011 2:01 PM (GMT -5)
I am really considering it. I am going to bring my husband to my next appt, I think I am just really close to making that decision. I do hope I can have a baby before I need surgery.
Posted 9/1/2011 3:03 PM (GMT -5)
Hi Beth,

Sorry you are having so much difficulty. Seems we are on a similar Remicade train. I have that happen too. Seems the more formed the BM, the more blood sometimes. I am meeting a surgeon next week. My GI is throwing some other meds/enemas at me to see if ANYTHING works, but I am still proceeding with the surgical arrangements. If I get better in the meantime, then great. If not, then surgery. Either way, I plan on getting my life back one way or another.

I am sorry that I don't have any advice about pregnancy. I know the surgery lessens your chances, but it is not impossible. With your other health issues, as notsosicklygirl said, maybe you could look at other options. I wish there was another solution for you.

At least start talking to surgeons to get their input and advice - especially regarding potential pregnancy and your other health risks.
Posted 9/1/2011 3:36 PM (GMT -5)
Beth, if you get to the point where you are talking to a surgeon, ask about having the surgery done laparoscopically. That greatly reduces the amount of scar tissue inside which is the culprit for making it difficult to concieve. I know there are a lot of women out there with J pouches and babies. I can't offer any advice on that part. Luckily I had my 2 kids before I was dx'ed with UC. I would have loved to have had a 3rd child but then I got sick and now I have the j pouch and I'm 43 now so I think that ship has sailed.

Posted 9/1/2011 5:48 PM (GMT -5)
Beth, you have fought a good hard battle and tried harder than I to hold on to your colon. No one deserves better health than you right now.

Sue
Posted 9/1/2011 6:53 PM (GMT -5)
i am sorry so many things are going so wrong right now, that cant be helping your situation any. i hope all those things get resloved soon.
as for surgery, i had it 4 years ago and i'm sooo glad! surgery is the ultimate win, literally kicking that useless colon out!
i really wish i had had surgery before i had my child. It was very hard for me while i was pregnant (i was in complete remission, that was good) i was constantly worried that the meds i was taking were harming my baby. But the thought of surgery had never crossed my mind before that.
being pregnant is crazy hard on your body on it's own, i can't imagine what it would have been like had i been in a flare.
and having an infant while having UC is so hard, it's hard enough to be a new Mom with no sleep and a crying baby and all the other huge changes that come with it. it didn't make it any easier that i spent the 2 years of his life in the bathroom, that poor baby played in there all the time! and then i finally had surgery when he was almost 2, so i was unable to take care of him while i was recovering.
what i'm trying to say is, it is much easier to raise a child after surgery, and easier on your family. while i was sick and recovering my family had to take up a lot of slack for me, which wasn't easy on anyone, and wasn't really fair to anyone .
just something to think about when you decide whether you want to have a baby before or after surgery.

good luck with whatever you decide!
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