Proctitis- Need Help Before Appt

I've had colitis since 2004, developed into pancolitis in 2008. Went on Humira 2Xmonth....took about 5 months but I was then flare free for 2 1/2 years.....until April 30th.

On April 30th I had my first colonoscopy since my follow-up in Jan 2009. The Dr said my colon looks great, but I have moderate proctitis. Now I can't stop bleeding. He started with enemas which really didn't help, and then switched me to canasa suppositories every night which helped for a bit, as long as I remembered to use them. If I forgot for even one night I would bleed again. Now, it doesn't even matter if I use them....seems like I still am bleeding all the time. Never a lot, but when you were blood-free for 30 months anything is a lot.

The first Dr (the one who did the colonoscopy) immediately wanted to put me on prednisone AND used to be behind an average of 1 1/2 hours.

I meet with my new Dr next week.

My questions are: What could be causing this? What should I tell my Dr I want done when I go in? (I'm thinking another scope to see what is going on in there)

Thanks.

Xena0410,

Welcome to the forum.

Have you noticed any difference with the foods you eat? Are you on any diet?

I have a bias for LDN - low dose naltrexone, because it's worked so well.

IMO, look into that, and see if your doctor will prescribe it for you.

If you do a search on LDN on this forum, you'll find a few with links and info, if that interests you.

What do you think?

I was on Asacol the FIRST time my colitis started up in 2004, but nothing since the first 3 years or so. He only had me on the enemas for 6 weeks. I don't know if that's long enough or not. I've been on the suppositories for about three months now.

Don't notice anything in my diet that causes it to worsen....so far the only thing that made it worse (or occur if you want to look at like that) was the colonoscopy.

I'll definitely look into the LDN (thanks InSoFla). I'm hoping he'll give me something orally to add to the rectal meds.