My doc (who I just love, he's new to me and finally someone that listens) is having me try Entocort for a bit. He said it can be taking long term. He has me on low dose pred just to get things under control until the Entocort starts to kick in. I'm working up to the 9mg of Entocort, not just jumping in with three pills and pred.
so today was 10mg of pred and 1 pill of entrocort (3mg). If a lower dose of Entrocort gets this under control that's what we will stick with, no all people need to jump on the 9mg at once.
If the Entocort on it's own with my canasa and Lialda doesn't do the job well it's on to Remicade.
I think I tried Uceris which is the same thing right? But that was only in the 9mg capsul and I remember now that didn't agree with me. I think I stopped taking it because of the side effects. I can't remember I've tried so many things.
THis last round of Pred really really helped me! All my bleeding stopped until I got down to 10 or 5mg and then the last two weeks being completey off it my symptoms returned.
So we're trying this combo for a bit and see how I do. I just wanted to share with you.
Anyone out there loving Entocort? I would like to hear some good things about it.
Thanks, Linda Maybe I will try the crohns forum too since more people with crohns use it more.