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salafalk enemas

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Ulcerative Colitis
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Posted 1/8/2015 8:06 PM (GMT -5)
Just wondering how long anyone has used salafalk enemas nightly? Tried to taper to every 2nd night after 2 weeks nightly and symptoms came back. I hope they can be used that much with no complications to liver ect....they work so well...
Posted 1/8/2015 9:07 PM (GMT -5)
you can go years
Posted 1/8/2015 11:27 PM (GMT -5)
Ya these are meant to be used for a lifetime. You can certainly go AT LEAST a decade without concern. These drugs act topically and very very little goes into systemic circulation. The reason most people stop them is the inconvenience
Posted 1/9/2015 12:44 PM (GMT -5)
I use them every night. I can miss about 1 a week and be ok, but miss 2 in one week and symptoms come roaring back.

I've been on them for years and gave up on trying to taper a while ago - I just have to suck it up and stick to the routine! They're annoying, but they work so well and are safe.
Posted 1/9/2015 4:30 PM (GMT -5)
Thanks for that, yes I too am unable to "not" use them at this stage...so I will just continue as well. Have a great weekend !
Posted 1/9/2015 5:21 PM (GMT -5)
Two weeks doesn't seem a long time to start tapering. I used them every night since May and have only just started to taper. So that means I did them for seven months. I am now doing one every other night and will probably stay on this for a while before I start to do every third night. I believe in tapering very slowly so you get used to the lower doses gradually.

Hope this helps.
Posted 1/11/2015 10:02 PM (GMT -5)
i was using salofalk enemas to treat and my new (well, he's not new anymore) GI said that 5ASAs are for maintenance and not tx. so if you're still getting symptoms you might need a different class of drugs. (he put me on betnesol and it worked like a charm. now i do salofalk supps every couple nights)
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