Posted 5/3/2015 9:02 AM (GMT -5)
The best advice I can give you is to get educated on your disease. We're talking about a disease here with no known cause and no known cure and no known medicine which is guaranteed to work. Most doctors use a progression of meds. First they put you on the safest ones and if that doesn't work they move you up to the next level and so on and so on until they finally luck on one that works. No doctor is an expert because no doctor knows ahead of time which med will finally work on which person. It's all trial and error, luck of the draw. Will the first med work or then 10th med? In the meantime you are just the guinea pig. On top of that, most doctors don't mention alternative therapies like probiotics, supplements, and diet changes - many of which actually help but you have to go down this road yourself. Most of us who are successful do a combination of meds and alternatives, not just one or the other. Learn, learn, learn because all the doctors know is med progressions and don't even know which one will wind up working until it does. Every case is individual and different so you have to find the jigsaw pieces yourself regarding your own case and how to fit them together because the doctors don't work with all the pieces and only have half of the puzzle.