5 years ago I reached remission after 5 weeks in the hospital ( Pred, IV Steroids, and finally Remicade ). I had pancolitis and at my worst reached 40BM/day ( mostly blood/mucous ).

I told my GI back then ( once remission achieved ), should I flare like that again I'd likely opt to have the colon removed.

Currently, I'm experiencing about 6 BM's, only 2-3 with stool ( after food ). I'm taking Salofax 4G enema's nightly with Cannabis ( so I can sleep with BM ), and seems to be maintaining... but not getting better.

I'm wondering if anyone can recommend a resource so I can connect with those who have a J-Pouch or Colostemy Bag.

Over the years I've considered going off Remicade because of side effects ( lymphoma ), and have kinda gotten over the shock of not having a colon. I think it would be worthwhile to live drug free but I'm not clear on the consequences of having a J-Pouch. My GI say's there are issues, but hasn't elaborated. I'm meeting with him on Tuesday to discuss some options.

BTW: My GI works out of Mt.Siani, on University Ave in Toronto. I'd be curious to know if anyone else go there and perhaps we can exchange info via PM? I'd like to know what treatments others have received there. Generally, my experience has been positive.

I had j pouch surgery 5 years ago. Best thing I ever did. Ask me anything you like. I'll be happy to try and answer any questions. :)

Ps. The website notsosicklygirl is referring to above is www.jpouch.org and it's a great site but sometimes slow to get info.