Hi to all my friends on hw. Its been such a long time since i have been here due to a very hectic few years.
But after many years if remission i am going through the worst flare up i ever had. It all started on my 39thbirthday, tye day i decided to quit smoking fir good. within 2. days i was niticing symptoms. Within a month i was admitted to hospital for 5 days and started on the usual enemas and maintenance meds.
Last week i was rushed into hospital with severe bleeding and pain. i was given a sigmoidoscopy without sedation( worst experience ever). Tye doctor doing the scope told je i have severe inflammation in all areas visible in scope. So i had to get 400mg iv hydrocortisone x 5 days abd i am niw back on Pred for a few months.
But tye problem is im just getting sicker everyday and it looks like im going to be back in hospital very soon. Ive lost 43lbs since my birthday( i was around 80lbs overweight) to begin with.Tye thought of eating anything is non existent and when i try to eat im in agony.
It is such a tough situation as i am fulltime carer to my little girl who has profound medical needs. I just cannot leave my girl to get treatment unless im seriously ill.
This disease tricks you into thinking it has gone...only to come back far more aggressively.
my new treatment is pentasa enemas x2, pentasa tablets,prednisolone 40mgs,buspirone buscopan and centrum advance.
Hope some of my old friends are doing well.
Marty
Post Edited (marty1976) : 12/4/2015 3:17:02 PM (GMT-7)