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Rectum and bleeding

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Ulcerative Colitis
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Posted 3/12/2017 10:08 PM (GMT -5)
Seems my rectum stays inflamed and i see traces of bleeding if i don't do my Rowasa or Cortenema nightly. Anyone else go thru this??? Makes me think that surgery is the best idea.Going to see if Cornell Drs in NYC take my health Ins??? Have had UC for 32 years and it seems the disease has progressed to current bleeding status.Stools are mostly normal as long as I'm doing enemas.
Posted 3/13/2017 12:08 AM (GMT -5)
I had rectal inflammation and bleeding even if I did enemas every day. I think it's okay to do enemas daily, or even use some kind of rectal 2x a day if it keeps you in remission. I feel like, if that's all it takes to keep you in remission, i'd keep doing that and not even think about surgery. I had surgery because nothing did anything to control my symptoms. if i could have been healthy with an enema each night, I'd do the enema! smile Of course, you don't want to get to the point where you're using steroid enemas all the time, but you can probably try Uceris foam and steroid suppos, and work to transition off to rowasa/canasa over time...
Posted 3/13/2017 6:47 AM (GMT -5)
I did rowasa nightly for 2 years, because if i lowered my dose then my symptoms returned.
Posted 3/13/2017 8:12 AM (GMT -5)
I have to include Cortenema at least every other night or sometimes a few nights in a row.Im 58 yo and the window is closing on age/surgery and i can see the path my UC is taking .Dont want to go on REMI or HUMIRA bc they lower your immunity.Want to have surgery next January when business gets slow,hope i can keep my UC from getting any worse.Getting ready for Blizzard here in New York,don't want to have an urge while I'm shoveling.Be well all
Posted 3/13/2017 9:31 AM (GMT -5)
absolutely agree with NSSG -

if you have had UC for 32 yrs, and the only thing you're dealing with is easily controlled butt bleeding, surgery seems like a gigantic leap - what makes you think it's going to get worse ?

and i think that window will be open for quite some time -
Posted 3/13/2017 4:17 PM (GMT -5)
Its only in last 6 months that i see bleeding if i don't use cortenema,thats not good.You know the Glenn Frye story??? pneumonia and UC at 69 yo-was treated with heavy anti biotics to kill the pneumonia .Well his UC was flaring from anti biotics and he died.Combo of UC and pneumonia killed him .I dont want that happening to me.I don't like the fact that my UC has gotten worse in last 9 years since i had pneumonia.Remi-Humira-6mp are not great meds to be on,they can mess up your body.Id rather have my badly diseased body part removed
Posted 3/13/2017 11:23 PM (GMT 0)
What about gut-specific entyvio?
Posted 3/13/2017 7:51 PM (GMT -5)
Don't care for most of UC meds bc of side effects,just bc side effects don't show right away doesn't mean they will never show up.Kidney issues,Arthritis etc are things i hope i don't have to deal with in future.I don't fear having the surgery,i think my quality of life will be better.
Posted 3/15/2017 4:13 AM (GMT -5)
3timechamp I was in the same situation as you are - barely any other symptom except for softer stool and very moderate bleeding, with no urgency or abdominal pain and 3 BMs per day on average.

What has worked for me twice bringing complete remission was a course of Metronidazole (Flagyl); this has been shown in literature to be helpful in most cases. The fact that your UC has gotten worse since you had pneumonia would make me think there is some correlation with a stronger bacterial overgrowth in your large bowel, hence why a course of antibiotics could be helpful. Of course I am not a doctor and this is solely based on my personal experience, but it absolutely worked for me.
Posted 3/15/2017 7:15 AM (GMT -5)
Course of Anti biotics for me at least sounds dangerous.Anti-biotics and me don't go together very well-BIG-D usually sets in. Flagyl to stop bleeding in rectum?????? maybe but Cortenemas work perfectly except i try not to do them every day.How long have u had UC???? My Dr who I've had since 1986 said my colonoscopy showed a diseased scared colon .He wants me to go on humira or remi and i prefer not to bc of side effects.Rather would go for surgery,as i don't think rectum will get better.So i have an old nasty diseased colon that probably is not going to get better.Is surgery best at 58yo???? i think so
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