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Ulcerative Colitis
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Posted 1/29/2019 5:36 PM (GMT -5)
Hi

I have been taking simponi for 3 months now but have had to stop due to severe aches, swelling legs and hands. I have had all my bloods done and heart checked but everything ok.

Just wondering if anyone has suffered similar while using simponi
Posted 1/30/2019 9:57 AM (GMT -5)
Welcome to the forum. I am sorry to hear you had an allergic-reaction to Simponi, there is a small percentage of people who have adverse reactions to the various medications available. The good news is that having an adverse reaction to one medication, does not mean you will have a similar experience with others.

What is your next treatment plan after discontinuing Simponi? Are you on other medications and what have you tried and failed before? Tell us a little about your journey with UC (as a good introduction that'll help us understand how its been).
Posted 1/30/2019 10:21 AM (GMT -5)
I’m about the same length of time into Simponi as you, and as I mentioned in another thread this week, I don’t beleive it is working for me.

With all drugs, you have to weigh up the pros and cons. If for instance Simponi had me back in remission by now, I would probably put up with a lot of the other stuff that I’ve experienced with it. Aches, weight loss, feeling generally lowsy.

It is so individual, but you have to decide what’s best for you, aches, or tips to the toilet!!!

Out of interest have you found the Simponi to be effective with your symptoms? How long did it take to work?

I’ve seen no positive results yet at week 12.
Posted 1/30/2019 1:19 PM (GMT -5)
Hi

Thanks for the response.... I've been diagnosed just over three years with a couple of hospital admissions... I'm now going to try humira as I had an allergic reaction to 6a.

My uc reacts really well to pred but finding it difficult to maintain remission.
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