Sara14 said...
Has Cleveland Clinic come up with a treatment plan for you yet? You're lucky you live close to it.
Moving up next remi infusion (will be second), daily KUB, flex sig with biopsies to rule out CMV, more stool tests, CT/MRE to make sure it isn’t Crohns, blood transfusion tonight as my hgb is 6.6. They seem to be very much on top of everything so I am very thankful to be here. The other guys wanted to release me back home on oral prednisone. These guys said I should’ve been getting solumedrol every 8 hours vs once daily. So now instead of 60 daily I’m getting 40 every 8 hours. Makes sense since the further I went from dose the more I could feel symptoms come back. Hopefully this will give my colon some more healing time.