SALOFALK suppositories

Hi everyone,

Hope everyone is doing well.

Just some positive information. Over time I’m a believer in Quincys advice on rectal meds. My son is now down to just the suppository for maintenance and it has held off any symptoms. Best time he’s had under his disease, no blood, 1/2 per day etc. Even better he takes the suppository himself and I don’t need to be involved. Happy days and worth a try anyone that’s struggling with the rectal meds.

My sons route was enemas until bleeding stopped and also suppository and now just suppository, that’s been 7 weeks just them now.

Long may it continue, hopeful he’s lucky and gets a remission for a few months/years.

Hi...great news! Is your son on the supps nightly? And how long have they been suggested to use? I do hope he's also on the oral as well (had to ask).

Thanks for the update.
q

Hi...considering the times we live in at this point, my stress levels are pretty high for oh so many reasons.

Good to hear your son is on oral mesalamine.

Just a quick fyi...tell your son to be aware of very early symptoms that can relate to being a flare. The bleeding isn't an only indicator....it is an obvious one, however.
Those symptoms are changing stool diameter and amount, constipation, more mucus, cramping, stomach discomfort, excessive gas...meaning more continual or increasing.

Stay safe,
q

Definitely progress!

Did your son taper the enemas down to the suppositories or just go off the enemas straight to the suppositories?

What he could do is add an enema twice a week for a larger dosage boost of mesalamine and use the suppositories between. I, personally, would go back on the enemas nightly to get through the constipation phase and mild inflammation yet to deal with. Then taper to the suppositories.

It took me years to figure out mild symptoms of healing during a flare would equal the opposite as the start of a flare.
There are always the options for your son to increase if his symptoms increase, such as worse constipation or the more obvious of what he's had in the past.

Please keep us updated how he's doing.

q

Post Edited (quincy) : 5/26/2020 10:45:26 PM (GMT-6)