Remicade working but not--antibody?

Hello. I have been on Remicade injection ----100 mg/10 mL---- since April or May. Overall doing really well. Had last infusion last Friday. I started to have blood in my stool 1 day later with significant pain in my left side. Yesterday I started feeling better again.

I am wondering if i may need to get my next infusion earlier or a stronger dose.

Also my B12 is a bit low and homocystine is 14.5 . Can UC effect this?

Missing Key Value : en-US, 736

notsosicklygirl said...
Some people are non responders. You should get your levels checked and see what your gi thinks. A higher dose might be a good solution but it won't help if you're a non responder. It never helped me personally. I think about 50% of people respond. I haven't looked at the numbers in forever though so I could be way off.

What does non responder mean? Are you talking about anitbody stuff? It healed me wonderfully for at least the last 6 months. Haven't felt this good in years. Scares me to think it won't work.

notsosicklygirl said...
If you're doing well, I am sure you've responded. Non responders wouldn't have any response at all. That's what happened to me. You wouldn't have antibodies but it also wouldn't work.

You might just hold steady and see how it goes. It sounds like you've just had a few bad days and you're okay now. Can you request a calprotectin test? You could always use rectal meds to assist...

Thank you. Yes, I had a bad few days but much better now. They are doing an antibody test the day before my next infusion.