Proctitis to Pan-colitis in two months!

Writing this in somewhat disbelief!

Two months ago I diagnosed with Proctitis (20cm), I went on various treatments but they weren’t doing much, about a week ago I started to feel really unwell. Going to the loo a lot, awful stomach cramps, nausea, horrendous watery D. I felt so poorly on Tuesday I decided to go to A & E as the cramps were so severe. Lucky I did because i was severely dehydrated.

I’ve been in hospital for a few days and today had a scope, I’m so sad to say it’s turned into Pan-colitis.

I’ve been put on IV steroids to try and get things under control.

I guess I’m just looking for some positivity and hope that things will get better. Im feeling scared for my future, having it progress that much so fast has scared me so much.

Hope everyone is doing ok!

M xx

Flowers...wow. When you were diagnosed, did you have biopsies throughout...and do you have the pathology results?

I'm hoping that you've been checked for Covid, had stool samples and more biopsies for other possibilities such as invaders or microsopic colitis etc.

It's good you're in hospital now and under care. Ask lots of questions to know exactly what they're doing and results of any tests.

Please keep in touch...virtual hugs!
q

Understandable. Please keep us updated as to how you're doing.
q

I was in much the same boat. I went from 0 symptoms today raging in about 2 weeks and ended up in hospital for 20 days (mainly due to incompetence at 1st hospital so after 9 days I checked myself out and went to another one). I ended up extremely hopeless and depressed ( my wonderful GI at the time explained how what’s going on in our diseased gut can actually contribute to depression).

Now I’ve been in remission for over 3 1/2 years on entyvio. I didn’t want to have to be on a biologic but I’m glad now because I’m living a pretty normal life again. Point is to do your due diligence and be your own advocate. Be persistent with your meds and be sure to try rectals. I didn’t find this site soon enough to learn things that my drs never mentioned to me , like enemas.

Hang in there. It can be a bumpy road but there is a normal life at the end.

Thanks so much both.

If this disease has taught me anything it’s expect the bloody unexpected.

After a few really low days of being upset and feeling pretty alone as can’t have visitors with Covid and the ward I’ve been placed on is a dementia ward as they have no space on the gastro ward for me at this time (hopefully moving today!)

I finally have an appetite and can eat without feeling really sick or crampy.

It’s the little things I am holding on too.

I am in discussions about biologics a discussion I thought was miles in my future but what can you do. I refuse to be negative and let this define me. Many go through so much worse.

Thanks so much for your support as always!