Update on Remicade

Faithmac, hopefully you will get the results back soon. If I remember right you said your dr is a bit on the aggressive side which I think is a good thing.

I think it's great that you will be getting the Evusheld injection!

Keep us posted.

It's good that you are seeing improvement! That means it's working. I know a lot of people here have very fast reaction to remicade. It was slow for me. I don't know how common it is to be slow, but as long as you are better than when you started don't lose hope.

Let us know how Evusheld goes. I am going to talk with my doc about it. I read about it and am hesitant because I know how sore my arm was for days after the vaccine and I read they give Evusheld in the butt. Ouch!

Actually I feel a lot better then before starting. Except I’m Very achy all over. Is that a reaction to Remi?
Not sure what to take. I have a few things for the headaches. Feel very arthritic.

Thanks lol😬
You think I should mention it. They have a portal. They did ask me a couple of weeks ago. I didn’t have them at that time.
Downhill at 60👍All goes to s- - it

Took Tylenol it helped. Just sent them a note. Is it a really bad thing? I do feel better otherwise .
It started a few days ago.

Just got a response. Said they are waiting for the blood test. Said if I don’t have liver problems take Tylenol. I had a lot of joint aches on Humira and Entyvio. Won’t know until results today is the 6 th day . Had the blood drawn last Tuesday. Nurse said 6-7 days for results.

Hey Clo,
This is much more involved then Entyvio. Feel like I’m taking everything backwards. Remicade is one of the older drugs. The others were so much easier. Not many blood tests . Either you upped it time wise or it didn’t work anymore.
It seems to be working right now! The joint pain could be arthritis from the accident. Hopefully it is.
Really want Remicade to work.

That's good news, Faith! Even though my levels were high similar to yours when I wasn't getting to complete remission we increased anyway and it made all the difference. Doc said some people just need higher doses.

yep -- my journey with remi is in my sig

Typically every 8 weeks is normal after the loading doses, however, some need to have the infusions moved closer together. Will you be hearing from the dr or the nurse to discuss the labs? I would ask to have the infusions moved to every 6 weeks & see how you do, or who knows your dr may move you up in the dose.

You could very well have arthritis from your accident. You need some good news. Keep us posted.

Faithmac, just checking on you, I hope you are doing ok.

Faithmac, hopefully the additional meds will stop these symptoms. This month's infusion will be #4, just keep tracking how you do at the 6th week mark, keep that paper trail going. My gi did the same with me when I went on Remicade, he was gi #5, lol. I have crohns, had an emergency small bowel resection in 02 out of the country, 4 other gi's said you had surgery, your crohns is gone. I battled drs for 2 years & by the time I got #5 I was a mess, physically & mentally. He was the first one to order a scope & went immediately to Remicade. By the 6th month mark I could tell some difference. Eventually my infusions were every 4 weeks & 10kg, but it took time. I will give him much credit, he did not do the one size fits all when it came to treating his patients, he's a great dr.

Keep us posted.