Slow stomach emptying and Domperidome

I had  a gastric emptying test which came back in the normal range but the very low end of normal. Consequently, my doctor called me in Domperidome to see if it will help with my primary symptom of nausea...Have any of you had this diagnosis? Have you tried Domperidome? How long did it take to feel better?

Thank you---My reflux doesn't seem bad but the nausea is terrible and the gastric emptying showed my stomach wasn't emptying properly...

Because they are crazy and drug companies are so powerful . i will be getting mine from a compounding pharmacy. I am sure there sre other places you can obtain it...My main symptom is nausea too and some pain in my upper back, left upper abdomen and left ribs sometimes....Were you diagnosed with gastroparesis? Did the 20mg. help you? In your info at bottom, it states you were diagnosed with POTS ---what is that?I am so sorry you have these things---it is really difficult to live with constant nausea...and especially you feel helpless to do anything about it...Perhaps you can find another compounding pharmacy---where do you live?

My gastric emptying test came back normal. I had several EGDs that confirmed inflammation in the stomach. After 3 nissens and all my symptoms returning I was referred to a wonderful specialist. My first appt he asked weird questions like if I have dry eyes, if my hands and feet are always cold, how much I sweat. After some tests he diagnosed me with Pots, postural orthostatic tachycardia syndrome. I have nerve issues too so he thinks my nausea might be connected with Pots or the nerves. The 20mg helped so much better. The place I was ordering them from also had instant dissolvable tablets that I thought worked better than the capsules. I'm in Wisconsin. Someone on my Pots forum said there's a compounding pharmacy in Ohio that ships, I just have to get my prescription sent there but I don't see my specialist until the end of Feb now. It's been 3 years with this nausea and everything else. Most people don't understand how debilitating it can be. It's awful! I hope you find something to help you!

I'm 28. My nausea is awful and 24/7. It's tolerable as long as I don't eat or drink. Once I eat or drink I'm in the bathroom the rest of the day. I haven't actually vomited since my first nissen (not sure if I can) but it seems like it can happen at any second and it's a comfort thing I guess to be in there. I get hot, sweaty, shaky, watery mouth. I still have acid that feels like it's sitting right in the back of my throat that would come up if I bend over which doesn't help. My nights are awful. I used to stay up until I couldn't keep my eyes open anymore because if I laid down it would get worse. I started a job 3 days ago and have to be up at 5am so it's been very rough. I have 3 bottles of carafate but that doesn't really help. My last egd there was a lot of bile in my stomach so I tried the orange powder (can't remember the name) but it was like drinking sand and didn't help. I found a site I can order domperidone without a prescription finally! My nausea starts getting better about an hour after taking it. It doesn't take it away completely but improves greatly.

I've lost a lot of weight from this which concerns my drs. I also have anxiety which doesn't help the nausea. It's like a vicious circle. I eat one small, bland meal a day in the late afternoon and can't leave the house after that. I'm thinking something with motion makes it worse?

I still have my gall bladder but have had it tested twice and was normal. My drs are quite stumped as to what's causing it but they think it's neurological (I always thought I was a little crazy HA). The thing I liked about domperidone was I had no side effects and I'm very sensitive to meds. It took about an hour before I started feeling better. Have you tried other anti nausea meds?

I take zofran now, doesn't help but I like to think it does, mind over matter type thing. Phenergan knocked me out too, maybe I should take that at night so I can sleep. I've tried dramamine but not emetrol. I've taken nauzene but that's basically a sugar tablet. It's very frustrating. They don't know what's causing your pain? I always say they can cut off my arm if it would take the nausea away. Lol I live in pain from the pots and it's nothing but I'm a big baby when I feel sick. It might take a few doses to build up in your system but I would take 2 if you don't feel better after a week to see if that helps. I'm hanging on a hair of hope that I don't have to deal with this forever, something has to give. I was laying in bed for an hour and it got to the point I had to get up.

Have you been tested for h. pylori or anything else?

Yes keep us updated!! I've been stumping my drs for 3 years on this. I requested my medical records and one of the reports from my surgeon says "complicated patient". Yup that's me! Nothing comes easy. I have not been tested for mitral valve prolapse that I know of. How do they test for that? The domperidone helped so much that I was like a crack addict looking for a hook up after I seen I couldn't order it from Canada (the whole 'must have it to survive' feeling). Lol I had no side effects at all from it. I think I make my anxiety worse by worrying about how I'm going to feel after I eat but the domperidone actually helped that knowing I took something that works, if that makes sense.

I wonder why he would want to try erythromycin first. That's an antibiotic, didn't know that was used to treat nausea? At least he has a plan though! Do you take protonix in the morning and at night? For some reason I can't take my meds in the evening, it raises hell in my stomach. Carafate would help with the bile reflux. I was taking questran powder for bile but didn't help. It was like drinking sand, very thick and gritty and sat in my stomach like a rock. The taste wasn't horrible but the texture was. What tests is he going to do to see what's causing gastroparesis? Quite interesting.

The thing I find odd about me is I can't drink thin flat liquids like water or juice. It seems like it comes up way too easy and just sits in my throat. But I can have soda and coffee just fine in moderation. Tonight I drank too much and feel like I'm going to float away!

If they say he's the best in town, I'd follow it too. If it doesn't help, move on to the next thing. I've had my thyroid tested, gall bladder, hormones (since it started when I was pregnant), numerous blood tests that I couldn't even tell you what they were testing for. I read about people that are doing great too, just have to find the cause and right meds. I will call my GI tomorrow and suggest the gastric test again. I usually have half a sandwich for lunch around noon and I'm full the rest of the day so it very well could be. I know my intestines move very slow from 22 years of laxative use, pretty much killed all my nerves. I haven't worked steadily for 5 years. The first 2 years I stayed home with the kids. The last 3 have been because I've been sick. I've tried working but it doesn't last long. Eventually the nausea and fatigue will catch up to me. I started the job I have now this week. I'm cleaning from 6:30am until around noon. I've definitely had the nausea, flushing, sweating but I know if I don't eat or drink, I won't be sick. I have applied for disability but was denied. I'm going to refile after I get a further diagnosis with my pots since there's so many types. I haven't seen anyone get disability for reflux but I'm hoping pots will help push it through. What kind of work do you do?

I will definitely look into it. I haven't heard of that before. I am certified in medical transcription but the local offices that are hiring for it require experience. I'm currently taking online courses for accounting and just finished up a tax prep course. I also have my cna but that expires this month. I would love to do something from home. I have 3 kids (boys are 5 and 7, daughter is 2) and most days are hectic with their school, work, and appts for all of us. I have a few friends in real estate that have suggested it but I didn't want to spend the money for classes with the market as bad as it is. I'm also perfectly content sitting on my couch with my heating pad, my daughter, and a book during the day. Lol I decided to pick up this job for extra holiday money but my fiance has been working overtime so that helps. I don't think it would be so bad if my nights weren't awful and I could get to sleep at a regular time. I have lorazepam for when I have anxiety attacks that makes me drowsy but I don't like taking it unless I HAVE to.

My PCP didn't want to prescribe it because it is addicting. But like you said, I don't like taking meds unless absolutely necessary. I can take it for a month and stop without any side effects. Yes I still have my colostomy. My GI at the time wasn't sure what was causing my intestinal problems. I couldn't have a bm unless I took laxatives, was like that from birth. My first 2 years was spent in Children's Hospital. Grew up living on laxatives. Had my first son when I was 20, got pregnant with my second son when I was 22. That pregnancy was hard, I didn't have a bm for 5 months which resulted in a scheduled c-section. My gyno said my colon was the size of a football and I needed to be seen asap. 2 months later I had my colostomy. Best thing ever!! It was the first time I felt normal and didn't feel like crap (no pun intended lol). I had no health issues after that, gained weight, was active, it was amazing, until I got pregnant with my daughter 3 years later. Now I have this mess to sort out but I wouldn't change it for anything. My dr said I can get it reversed but the nerves and muscles in my intestines are probably near gone since I could only take stimulant laxatives.

If you still have some domperidone left, can you take it? I second guess my drs too. Mainly my old surgeon because he kept saying my wrap is just fine but I had all of my old symptoms back in a matter of days. I hope you find relief soon!!

Do you know what thread that was in? I did get a denial in the mail. It said I could appeal it within 60 days. I tried to file an appeal the day after I was diagnosed with pots but it was 62 days. I called and was told I had to start over completely which is why I requested my records. I've had so many tests that I can't remember the dates. Thank you for the kind words. It's been hard to deal with when people around me don't believe it.

That a great start that you are starting to feel better!! I'm getting excited for you! Have you tried the erythromycin? I had to beg to get domperidone to begin with so do what you need to do to get relief!