Hi Sophie,Sorry to hear you're struggling. Yes, sometimes symptoms can come back even on treatment. That's why so many of us have decided to go the Nissen route. At some point it becomes obvious that whatever treatment we're on is no longer working.
Still, you're a long way from even thinking about surgery. There are many different PPIs out there, and some work much better than others. I am pretty sure your doctor will try a change to see if something else does the trick for you.
In the meantime, be very careful with what you eat and stay away from any food that might remotely be considered a trigger. You'll want to do whatever you can to help your healing.
My symptoms were atypical as well, and mainly involved lung problems and incessant coughing, wheezing, and bringing up mucous. People like us are harder to treat, and on top of that GI docs are more hesitant to suggest surgery as an option, since what we're experiencing may have nothing to do with reflux (allergy, etc.)
Hang in there! It's very likely that another (and perhaps stronger dose) PPI will do the trick!
Sorry you're dealing with this. I know how hard it is.
Best wishes!
Denise